advertisement
Reply
 
Thread Tools Display Modes
Old 04-20-2015, 07:53 AM #1
canagirl canagirl is offline
Member
 
Join Date: Mar 2015
Posts: 503
8 yr Member
canagirl canagirl is offline
Member
 
Join Date: Mar 2015
Posts: 503
8 yr Member
Default Ncv cause further damage?

My doc wants to do another emg/ncv. I had one in feb ( Ive had 3 in the last year). I'm not sure why. I sent her a letter ecplaining all my symptoms in an attempt to get her to change her coding for insurance coverage of my skin biopsy. It worked but now she wants another emg.

I'm worried that's it's going to cause more damage to my already physically damaged nerves. What do u guys think? I kind of want to cus I don't think they tested the right parts before but it hurts so mych and I'm worried about worsening my condition. I know it won't change anything so why do it right? Ugh, I want to know though cus I believe it's sfn but also large fiber from the acupuncture.
canagirl is offline   Reply With QuoteReply With Quote
Old 04-20-2015, 08:05 AM #2
canagirl canagirl is offline
Member
 
Join Date: Mar 2015
Posts: 503
8 yr Member
canagirl canagirl is offline
Member
 
Join Date: Mar 2015
Posts: 503
8 yr Member
Default

Tag in another question here.

I'm thinking of having an mrn to show where my nerves are phyßically injured. If I did this, could dr do surgical repair of many nerves? Is it too late ? My injury was 4 months ago
canagirl is offline   Reply With QuoteReply With Quote
Old 04-20-2015, 08:26 AM #3
Kitt Kitt is offline
Grand Magnate
 
Join Date: Aug 2006
Posts: 4,428
15 yr Member
Kitt Kitt is offline
Grand Magnate
 
Join Date: Aug 2006
Posts: 4,428
15 yr Member
Default

I don't see how it could cause further damage. They are done all the time for many reasons.
__________________
Kitt

--------------------------------------------------------------------------------------------------------

"It is what it is."
Kitt is offline   Reply With QuoteReply With Quote
Old 04-20-2015, 08:50 AM #4
Susanne C. Susanne C. is offline
Member
 
Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
10 yr Member
Susanne C. Susanne C. is offline
Member
 
Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
10 yr Member
Default

I don't think it can cause further damage, but it also seems unnecessary. Many people experience a flare up of symptoms, especially the electric shock/ tingling sensations afterwards but that passes.
Haven't your tests all been negative? It seems like you need a skin biopsy now rather than another EMG/NCS.
Susanne C. is offline   Reply With QuoteReply With Quote
Old 04-20-2015, 08:52 AM #5
canagirl canagirl is offline
Member
 
Join Date: Mar 2015
Posts: 503
8 yr Member
canagirl canagirl is offline
Member
 
Join Date: Mar 2015
Posts: 503
8 yr Member
Default

En bloc , that is what I was asking. There are multiple spots aling my spine that I am thinking would need to be repaired and then hopefully the nerves would regrow aling the rest of the length? I know highly doubtful. Just still getting Moore and more scared as it seems the nerves are damaged all the way to the ends now. Like the pain into scalp has slowly spread sides to my era and lower jaw then radiates out from lower jaw by my ear towards my nose and mouth and not only pain and burning but squeezing too. And that's just one example.

U r right about the ncv not showing much ( carpel tunnel in the wrist they tested and apparently an old injury in the leg they tested they said it was nothing. )
I'm thinking she wants to do it in more areas? I know it would cause pain but would it injure my nerves further? I believe it's not jut sfn bit large fiber too ( from acupuncture)
canagirl is offline   Reply With QuoteReply With Quote
Old 04-20-2015, 09:03 AM #6
canagirl canagirl is offline
Member
 
Join Date: Mar 2015
Posts: 503
8 yr Member
canagirl canagirl is offline
Member
 
Join Date: Mar 2015
Posts: 503
8 yr Member
Default

Ugh..!! I can't lean on my back at all it hurts so much in the needle sites. Is that normal normal? What I going to do???? Even if GABA starts helping I'm still going to be freaking out, I know it. I will constantly worry about how bad it's actually getting and am I harming myslef without realizing it.
It just seems too hard..every minute is a struggle why put myslef through this?
I know people get relief and go on living but what happens if they don't work? Or I get some releif but still not enough? Or the meds stop working? I'm only 31. If I was 60 I would be less concerned bc I wouldn't need meds to last for as many years.
canagirl is offline   Reply With QuoteReply With Quote
Old 04-20-2015, 09:07 AM #7
Susanne C. Susanne C. is offline
Member
 
Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
10 yr Member
Susanne C. Susanne C. is offline
Member
 
Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
10 yr Member
Default

When you say GABA do you mean Gabapentin or the supplement GABA? They are very different. We all assume it is Gabapentin since you have a prescription, but I am confused.
Susanne C. is offline   Reply With QuoteReply With Quote
Old 04-20-2015, 10:49 PM #8
St George 2013 St George 2013 is offline
Member
 
Join Date: Sep 2013
Location: Georgia
Posts: 905
10 yr Member
St George 2013 St George 2013 is offline
Member
 
Join Date: Sep 2013
Location: Georgia
Posts: 905
10 yr Member
Default Honey you have got to calm yourself down :)

Quote:
Originally Posted by canagirl View Post
Ugh..!! I can't lean on my back at all it hurts so much in the needle sites. Is that normal normal? What I going to do???? Even if GABA starts helping I'm still going to be freaking out, I know it. I will constantly worry about how bad it's actually getting and am I harming myslef without realizing it.
It just seems too hard..every minute is a struggle why put myslef through this?
I know people get relief and go on living but what happens if they don't work? Or I get some releif but still not enough? Or the meds stop working? I'm only 31. If I was 60 I would be less concerned bc I wouldn't need meds to last for as many years.

You have got to calm yourself down before you see the dr tomorrow. You also need to ask for something to calm your nerves down.

This 24/7 worrying is not getting you anywhere and you are only hurting yourself more.

There are many medications and treatments. You have to go slow and let them do one thing at a time to determine what works for you.

Something will work for you...or several things. We're all trying to help you navigate this but you have to listen to what we are all telling you.

I know it's bad now....believe me I've been there and so have all these people that are trying to help you. I'm not pain free now but much better than it was 2 years ago.

There is a light at the end of the tunnel so to speak.

Debi from Georgia
St George 2013 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
beatle (04-22-2015), bluesfan (04-21-2015), canagirl (04-21-2015), Electron (04-21-2015), EnglishDave (04-21-2015), ger715 (04-21-2015), glenntaj (04-21-2015), Hopeless (06-15-2015), Kitt (04-21-2015), Susanne C. (04-21-2015)
Old 04-20-2015, 09:00 PM #9
Diandra's Avatar
Diandra Diandra is offline
Member
 
Join Date: Nov 2007
Location: Connecticut USA
Posts: 549
15 yr Member
Diandra Diandra is offline
Member
Diandra's Avatar
 
Join Date: Nov 2007
Location: Connecticut USA
Posts: 549
15 yr Member
Default

Quote:
Originally Posted by canagirl View Post
Tag in another question here.

I'm thinking of having an mrn to show where my nerves are phyßically injured. If I did this, could dr do surgical repair of many nerves? Is it too late ? My injury was 4 months ago
Hi Canagirl,
Sorry for being late in the game to your posts. Do you mind me asking what injury you had 4 months ago?

Your pain and anxiety seem to cycle around and they feed on each other. Constant pain that it out of control is so scary. I know how scared I was before I got it under control. Have you seen a pain mgmt doctor? My main pain issue is neuropathy and it is controlled by my pain mgmt doc, not a neurologist. I found the neurologist did not look at all my pain issues and I never really found a good neurologist so my primary care doc sent to a pain mgmt doc I have been seeing for 10 yrs now. Please hold onto hope and know there may be some solutions perhaps not yet explored. I also wonder if your employer offers any mental health benefits, often called EAP(Employee Assistance Plan) for critical need counseling. With your pain levels and your crying and yelling, you poor dear, really need someone to talk to frequently until you have found some solutions.

I know you had gone to the ER without much help....do you have a primary care doc who can get you to a pain mgmt doc and a therapist. There are many therapists that deal with pain issues.

Private message me if you want to talk about things on a more personal level.
I don't know where you live...maybe those in your geographic area can offer names of pain mgmt doctors.

My best, Diandra
Diandra is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
canagirl (04-21-2015), EmilySH (04-21-2015), EnglishDave (04-21-2015), ger715 (04-21-2015), glenntaj (04-21-2015)
Old 04-20-2015, 09:16 PM #10
Tunaboy's Avatar
Tunaboy Tunaboy is offline
Member
 
Join Date: Mar 2015
Location: NYC
Posts: 149
8 yr Member
Tunaboy Tunaboy is offline
Member
Tunaboy's Avatar
 
Join Date: Mar 2015
Location: NYC
Posts: 149
8 yr Member
Default

I'm not sure if I felt worse but I hated it either way. Unfortunately, my new neuro wants to do her own EMG when I had one a few weeks ago
Tunaboy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
canagirl (04-21-2015)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Will my damage be permanent? richy448 Traumatic Brain Injury and Post Concussion Syndrome 7 10-20-2014 02:12 AM
Permanent damage? juliejayne Myasthenia Gravis 8 07-18-2014 04:41 AM
Damage From no treatment StephC Myasthenia Gravis 31 09-27-2012 09:20 PM
Did I do Irreversible Damage? mainelife Traumatic Brain Injury and Post Concussion Syndrome 2 08-06-2012 11:58 PM
mri for brain damage unluckywelder Traumatic Brain Injury and Post Concussion Syndrome 4 09-21-2009 05:28 AM


All times are GMT -5. The time now is 04:03 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.