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#1 | ||
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Member
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I was a stay at home mom, taught English for a year three years ago, did fine but wasn't on much medication then. It really tired me out and could get very painful. The cold was the worst of it. I am 53 and this condition has slowly worsened throughout my life. What type do you have, if they didn't give you a type is it myelin or axons? What are your symptoms now? It moves slowly but in my experience there can be big drop offs then a leveling off. Physical therapy has helped with with the big drops- loss of strength in hands due to a flare up, arthritis in the spine, sprained ankle, etc. it is generally not considered to be very helpful in the long run for muscle atrophy which is inevitable, but I think it can delay things a bit. I have never regained normal function from it, but I have improved a little. It is important to have a therapist who understands even a little about CMT and doesn't push too hard or too long. Mine knows when to quit, and it isn't when they normally would. I stop regaining strength much sooner than without CMT. You are right, it could be worse. |
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#2 | ||
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Grand Magnate
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I have AFO's and I drive with no problem. I do not do physical therapy. If you do be certain that they know something about CMT or it could hurt you. As far as gaining strength, that would be the good muscles you still have not the atrophied dead muscles you have which you can do nothing about. There is a fine line as to how much you can exercise, etc. CMT progresses no matter what you do.
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Kitt -------------------------------------------------------------------------------------------------------- "It is what it is." |
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#3 | ||
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Junior Member
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