Hi all, I feel that my SFN /PN is spreading as time goes on. It is now within my mouth, lips, tongue and my nose and sometimes in the trunk of my body. As this is spreading and feeling worse as time goes on I have alot of worries about the future. I have been signed off from a demanding stressful job since January and can no longer return to this type of work so will have no real income soon. How do you all cope work wise? Do any of you manage to fit some type of work around the PN, even those who have it really bad? I feel insecure about living on solely benefits as know many people who are in a real bad way who have had them taken away. Also the understanding of SFN/PN and its impact on daily living seems very limited so I doubt I will fare too well if I tried to claim anything.

I think this has probably been asked a few times already but is there really any hope for nerve regeneration in the relatively near future? I was told about ARA290 but couldn't find any studies ref efficacy for regeneration. It does appear to be promising for pain relief. I am a relatively young single parent to a toddler so I do worry about the future and how I will support my son and I hence all the desperate questions! :-)