:icon_lol:

I have a bilateral, asymmetrical, familial small-fiber neuropathy, with some large fiber and autonomic involvement. The origin appears to be hereditary, form an autosomal dominant gene. I suspect that toxic exposure to compound varnish may have been the trigger for the condition.

And moving on to . . . Jack Daniels, weed, whatever. I would encourage anyone who has any traits or habits pertaining to addiction to be careful with marijuana. It can be powerfully psychologically addictive. On the other hand . . . there appears to be no question that it can be an effective pain reliever.

I tried it as my condition deteriorated, but I found it to be not helpful at all. In fact, it tended to intensify my pain sensations. I have an MD friend who is a BIG advocate of using it for pain relief. He is a chief of an oncology dept. and has been doing some research on the side (he is also a huge fan of integrative medicine as preached by Dr. Andrew Weil). I think he just completed a study and has published his results -- may have been a pilot study. If anyone is interested, I can find it and post a link.

rafi

DanP: I think your NP is the closest related to my husbands NP, His is because of an extended period of untreated diabetes. We have Endocronologist(Diabetes Dr) who my
husband thinks is a quack (I sorta agree) she said that 300 sugar numbers were OK numbers, needless to say we ran screaming from her office never to be seen again. We have an Intern Medicine Dr who has been keeping an eye on our liver, kidneys and such, we have a Neurologist who is helping us with this nerve damage sitch, and a kidney specialist who does the obvious, and now a cardiologist to see if the heart is causing any of the pain,. The neurologist was the one who referred us to the heart Dr and he said " I really don't know why you are here the damage you have is normal for a man of your age (46). Oh yea, he has an aunt who has Charcot Marie Tooth (CMT) disease, so we went to have that checked out too!!!! Guess what?? NEGATIVE. The only common denominator that I see is they all seem to think that he might need a pain management Dr. to help us with this deal. Your opinion would really be appreciated and anyone else that would like to chime in. Thanks a Bunch..... This has been a grueling experience

DrMom49

Hi, I have been told I have small fibre peripheral neuropathy, no know cause as yet put have found out I am low in B12 & D. I am taking supplements now but have not had any improvment yet. We have a very slow hospital system over here and I am waiting to be seen by a neuroligist but this could take a while. :hug:

PN
 

I have peripheral neuropathy from nerves being pinched in more than one area of my lumbar spine and cervical spine. I has effected my hands,arms ,feet and legs and lately my bladder.The trigmenal nerve acted up in my face awhile back. That was very painful.

I have sensory motor axonal neuropathy caused by my lupus (autoimmune disease).

cheers
raglet

Wish I i knew the cause.....
 

I have mixed axonal and demyelinating peripheral polyneuropathy. I have been tested for diabetes, B12, folate, thyroid and a whole slew of other things, all negative results. Therefore, it is diagnosed as idiopathic. I have been complaining of symptoms since 1996 but was told over and over that nothing was wrong. Just this year I saw a new neuro and after a battery of expensive tests I was diagnosed from an abnormal EMG-NCS. Was initially started on Neurontin 300mg, which was later increased to 600mg. Now we have added Cymbalta 30mg. Haven't noticed much of a difference, just sleepy. My symptoms (burning, tingling, weakness, hypersensitivity) come and go. Sometimes things will be good for several months and then for no apparent reason, BAM.....the symptoms are back. Does anyone else have the same experience where their symptoms come and go?

Small and large fiber peripheral neuropathy. Doctors have been unable to identify the cause. I have had test after test and all blood work has come back normal. Had an MRI done and it showed atrophy to my cerebellum. Preliminary diagnosis is Spinocelebellar Ataxia. My balance has gone down hill over the past 5 years. I have little feeling in my legs from the knee down and my feet. My arms and hands have started to numb. I will say that I have started Cymbalta and it has helped with the neupathic pain. I have also begun to use a TENS unit and regularly attend acupuncture. I swim in order to stay active. All of this has helped. I have had serveral DNA tests completed to hopefully get a final diagnosis. I meet with my neurologist at the end of May to discuss the results.

Dewey

kprn have you had blood tests for autoimmune diseases or cidp (chronic inflammatory demyelinating polyneuropathy)? In both cases remitting and relapsing periods can occur.

I have polyneuropathie my right foot is more affected then my left foot and also my hands starting to get numb at the finger tops again the right hand is more affected then the left.Symptomes differ day to day,and are usually worse in the morning then later on the day.Today both my hands and left foot where very sensative.My left enkel is contstant warm
Cause of my PN still needs to be determined it could be a slow tyroid or a b12 defficiency.
Treatment i am getting now:Pens or percutanious nerve stimulation i also use L-carnitine and alpha lipo acid,fishoil and q10.
Starting this week with a trail treatment 1000 microgram hydroxocobalamine for a mouth.

At the moment i am looking for is a more agressive treatment maybe something like infuse treatment like tioctacid.

I walk,swim,cycle as much as i can to keep the NP under control