I am courious as to what type of nueropathy you all have. Mine is due to a Vitamine B6 deficiency.

Welcome to the forum Julie. It's good you found us, lots of good info here.

I am not positive about the why's of my neuropathy. I suspect it is a B 12 deficiency caused by my celiac disease not being diagnosed for so many years. My neurologist seems to be doubting my neuropathy, he feels it is a cervical problem instead. I have an MRI and an EMG tomorrow. I honestly think he just doesn't like the fact that my family doctor diagnosed my neuropathy. Sorry, I am very sick of doctors, especially the ones who look at you as work and not a person with feelings.

Hi julie
Mine is caused through undiagnosed diabetes so they call it peripheral neuropathy.

connected to poor thyroid functioning. Started in my early 30's then.

idiopathic small fiber primarily sensory neuropathy but there could be a contribution form prediabetes. I just saw my neuro yesterday and his diagnosis hasn't changed - I'm fortunate in that I have mild motor nerve involvement but I do have very painful sensory symptoms.
Welcome to the forum - you've come to the right place for information and for support.
Alkymst

Mine right now is pn but also another probably undiagnosed issue though I have had every test in the book and still not sure. I suffered from severe anorexia for 12 years so may have been related to that as well.

Hi Julie,
Mine is due to Sjogren's Syndrome which is an autoimmune disease. Diagnosed in my late 50's.

Billye

I have mixed axonal and demyelinating peripheral polyneuropathy. I have been tested for diabetes, B12, folate, thyroid and a whole slew of other things, all negative results. Therefore, it is diagnosed as idiopathic. I have been complaining of symptoms since 1996 but was told over and over that nothing was wrong. Just this year I saw a new neuro and after a battery of expensive tests I was diagnosed from an abnormal EMG-NCS. Was initially started on Neurontin 300mg, which was later increased to 600mg. Now we have added Cymbalta 30mg. Haven't noticed much of a difference, just sleepy. My symptoms (burning, tingling, weakness, hypersensitivity) come and go. Sometimes things will be good for several months and then for no apparent reason, BAM.....the symptoms are back. Does anyone else have the same experience where their symptoms come and go?

Small and large fiber peripheral neuropathy. Doctors have been unable to identify the cause. I have had test after test and all blood work has come back normal. Had an MRI done and it showed atrophy to my cerebellum. Preliminary diagnosis is Spinocelebellar Ataxia. My balance has gone down hill over the past 5 years. I have little feeling in my legs from the knee down and my feet. My arms and hands have started to numb. I will say that I have started Cymbalta and it has helped with the neupathic pain. I have also begun to use a TENS unit and regularly attend acupuncture. I swim in order to stay active. All of this has helped. I have had serveral DNA tests completed to hopefully get a final diagnosis. I meet with my neurologist at the end of May to discuss the results.

Dewey

kprn have you had blood tests for autoimmune diseases or cidp (chronic inflammatory demyelinating polyneuropathy)? In both cases remitting and relapsing periods can occur.