I hope. Its just so weird how this is spreading.

Great idea. And then once you get in you can say "uh, I accidentally bit my tongue, that symptom is resolved now but I do have these others…"

My first neuro took several weeks to get in, all the others were 3-4 months and I was having terrible symptoms that landed me in the ER. I took the earliest available neuro and he turned out to be awful.

7 months ago had brain and spine MRI and spinal tap
 

They didn't detect MS then, but I understand sometimes it takes time to show up. I am scared and I am going to go meditate and pray but first I will watch Netflix. Thanks for the thoughts. Y'all are awesome peeps.

Netflix will help.

I'm so sorry. All this stuff is terrible, but it makes it even more difficult when you can even have a dang cold beverage!

I have tingling, twitching and burning in the sides of my face by my ears along cheeks all the way toy mouth and front pArt of my tongue. Lately there are times where I feel intense pressure squeezing the sides of my face together. If it makes u feel better I have had a head and neck mri. Dr says no ms only herniated disc in neck.

Hey canagirl,

You refer to your neck issue of the disk as "only" a hernieated disk, but that is in my opinion a pretty big deal. I had surgery on a disk in 2008 and it was anything but "only a disk". It completely devastated my life! I was in constant pain and could not dress myself, sleep, walk, the list goes on and on. I am assuming there must be varying degrees of severity among each dx. In my case it was severe! I just do not want you to disregard that dx. It could be causing you major issues. I am no expert! I'm just referring to my personal experience. Maybe yours is mild and not compressing a nerve? I have read several of your posts and I am so so sorry for all your trouble. I'm praying you get relief soon.

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Btw, I was considering acupuncture but given your experience, I am very reluctant to try that now. Do you think most of your issues are a result of a botched acu. session?

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I've heard a herniated disc can cause issues but my doc says that there is no change in signal intensity so no cord compression. I have in my lumbar too. Doc says that if he took an MRI of the entire population over half would have herniated discs. I too thought that this must be my issue but apparently not.
I had neurological issues before acupuncture but NO pAIn. I am certain the acupuncture caused this pain. No doubt about it

I have this too. Also herniated disks between 5-6-7. I think I have accepted that the disks are not the problem. I don't see how it can cause damage to the nerve fibers all over my entire body.

One of my neuros seems confident that I have sjogrens so I am also on a sjogrens forum. I asked about the pressure/pain on the sides of my face and ears and many people got back to me saying that it is the attack on the parotid gland and saying it is "normal" for sjogrens. Also, many people got back to me saying that their onset was acute and rapid before it settled down and now they can cope, but have flares.