I have this too. Also herniated disks between 5-6-7. I think I have accepted that the disks are not the problem. I don't see how it can cause damage to the nerve fibers all over my entire body.

One of my neuros seems confident that I have sjogrens so I am also on a sjogrens forum. I asked about the pressure/pain on the sides of my face and ears and many people got back to me saying that it is the attack on the parotid gland and saying it is "normal" for sjogrens. Also, many people got back to me saying that their onset was acute and rapid before it settled down and now they can cope, but have flares.