For the past few weeks the neuropathy has spread into my ears and glands along my jaw. It hurts, throbs and is reactivating my neck and shoulders which I was hoping were going to calm down.
This morning I took a sip of water and it was strongly carbonated- but it wasn't. Every time I try to drink today anything besides a very warm beverage, my tongue tingles and feels just like I'm drinking club soda. I am so tired of this. What now? I called my neuro office and they said I need to come in Monday. I am so sick of this.

Please refresh my memory here.... did you have a brain MRI, to look for MS?

The tongue and other structures of the face are enervated by cranial nerves. They are not part of the peripheral nervous system.

I looked up tingling tongue for you, and it appears to be a serious sign. If you develop any weakness, on one side of the body, an inability to communicate, head pain, vision loss, then go directly to the ER. You can search further if you want.

There are less ominous causes, such as Candida infection, low B12, eating too hot of a food or drink which may temporarily burn the tongue, or some spicey food recently. Some people allergic to seafood may have tongue sensations as part of the allergic response. Poisoning by heavy metals should be investigated too.

So if you develop any further symptoms, get checked out at an ER.

actually, cranial nerves are part of the PNS....all except cranial nerve #2-which affects the eyes (hence the eye issues in MS):

http://emedicine.medscape.com/article/1948687-overview

I also get head symptoms-tongue, face, etc. They come and go like the rest of my body parts.

The tongue tingling is mentioned as part of brain lesions --as a symptom.

Tumors, stroke etc., MS... all CNS causation. It is best to be aware of that... so you can get help ASAP if it worsens etc.

Oh I'm sure MS can cause the issues also, I'm just saying PN can also cause it. It was one of my symptoms, and my neuro confirmed for me that it can be part of PN.

I definitely agree that an MRI is important no matter to rule out MS.

Also, many of the cranial nerves go thru the cavernous sinuses
in the skull...these also carry blood vessels. This can get very complex, and I don't know all the details, about it.

But infections can penetrate to these cavities (they are not the same as the sinuses we are more familiar with). The infections can arise on the face where certain areas drain in that direction.
(often called the "triangle of death")

http://en.wikipedia.org/wiki/Cranial_nerves

http://en.wikipedia.org/wiki/Cavernous_sinus

There was a very serious Mystery Diagnosis involving this special sinus area... involving the eye.

Hint== the speed with which you got an appointment with a neuro is proportional to the severity of the symptom you reported.

Keep that in mind.

Maybe I should tell the neuro appt. booking dept. that my tongue is tingling? 5 mths since referral and still waiting.

I had a brain MRI 6 months ago. Its not an allergy, spicy food or low B12 and I had my metals tested. Im very upset. The pain is concentrated more in my face sides of jaw and ears than ever. I took 1/2 oxy and 1/2 valium and it took the edge off and I have to get through tonight and the weekend.

Makes me really wonder if I should go with the mad scientist lyme doctors year of antibiotics.