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Old 04-28-2015, 07:40 AM #51
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Englishdave, what are your eye problems? are they due to the neuropathy or unrelated? I haven't heard of anyone else on here describing eye issues that's why it scared me so much,.
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Hey Canagirl,
In '13, on a rare occasion when I was driving myself back from radiotherapy, I was instantly struck with double vision. At 60mph everyone suddenly decided to drive on the right! After a rest, and by squinting through one eye, I managed to get home.

A year of tests, culminating in an MRI, shows a large, jagged lesion in the occipital region of my brain as the untreatable cause. Idiot Neuro could not tell me whether stroke, TIA or something else happened. I wait every day for another incident to rob me of another function.

Eye problems are one of the fastest causes of total life disruption. Driving - gone = no freedom. Reading, tv, computers all severely curtailed and modifications needed to participate. Hobbies like photography - impossible.

Cause is not as important as effect when we are discussing general living here. It's a hard road, which is why you need to take in Littlepaw's words. A similar journey from one who comes out fighting - with help - should give you a great boost.

Try not to let things overwhelm you, new symptoms will appear - some related, some not - our bodies love to break down like a car, once something goes it takes other seemingly unrelated parts with it. That is why Counselling/Therapy would be SO important for you to cope with all these issues.

I would also watch your Depression and self-esteem with your position at work. Ok, so it takes your mind off things and isn't strenuous, but crying in the bathroom is mentally shattering. Think about this.

Dave.
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Old 04-28-2015, 11:29 AM #52
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Originally Posted by Healthgirl View Post
It's crazy that the needle spots can be seen months later.
Maybe some kind of bacterial infection? Can you get your blood rechecked?
I know! My doc didn't seem to concerned about it. He doesn't think the acupuncture caused anything. He did admit however that he can easily see some of the spots (he put his fingers right on them before I had a chance to point them out ) They are small, red little bumps (you would mistake them for a pimple except they are in the exact same spots on either side of my spine (spots where she put the needle in) and have been there for months. He gave me a cream and that was it. Maybe I will ask for a blood test...what kind of test should it be?
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Old 04-28-2015, 11:32 AM #53
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[QUOTE=mrsD;1138853]What herb did you take?

fenugreek. I had taken the fenugreek alone a few months prior and had no issues. I asked the prescribing doctor about taking them together and she said it should be fine...obviously not.
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Old 04-28-2015, 11:36 AM #54
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I would ask to be tested for sarcoid, and Behcets syndrome.
Sarcoidosis makes inflammatory tissue in the body for little or no reason. And Behcets is an autoimmune disease that causes skin reactivity to injury.

Having those bumps still be there is not typical.

Behcet's:
http://en.wikipedia.org/wiki/Beh%C3%A7et%27s_disease
one test for this is disturbing the skin with a needle to see if
a bump occurs that is slow to heal.

Sarcoid:
http://en.wikipedia.org/wiki/Sarcoidosis
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Old 04-28-2015, 12:33 PM #55
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Originally Posted by mrsD View Post
I would ask to be tested for sarcoid, and Behcets syndrome.
Sarcoidosis makes inflammatory tissue in the body for little or no reason. And Behcets is an autoimmune disease that causes skin reactivity to injury.

Having those bumps still be there is not typical.

Behcet's:
http://en.wikipedia.org/wiki/Beh%C3%A7et%27s_disease
one test for this is disturbing the skin with a needle to see if
a bump occurs that is slow to heal.

Sarcoid:
http://en.wikipedia.org/wiki/Sarcoidosis
Which tests should I specifically ask for? ex. blood testing for ana or something?
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Old 04-28-2015, 12:59 PM #56
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Lightbulb

I believe for sarcoid it is a test for ACE enzyme in the blood.

Quote:
Blood tests -- Blood analyses evaluate the number and types of blood cells and blood proteins in the body, and how well the cells are functioning. They also track increases in calcium levels and abnormal liver function that sometimes accompany sarcoidosis. One blood test measures a substance called angiotensin-converting enzyme (ACE), which is secreted in large amounts by cells that make up granulomas. ACE levels, however, are not always high in sarcoidosis patients, and increased ACE levels can also show up in other illnesses. In short, there is no specific blood test to diagnose sarcoidosis. A newer blood test that is sometimes more useful than ACE is measurement of the soluble interleukin 2 receptor levels (sIL2R).
from http://my.clevelandclinic.org/health...s_is_Diagnosed

Behcet's:
http://www.mayoclinic.org/diseases-c...s/con-20027549
The pathergy test is commonly done first to screen. You seem to still have your bumps from the acupuncture!
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Old 04-28-2015, 01:15 PM #57
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Behcet's:
http://www.mayoclinic.org/diseases-c...s/con-20027549
The pathergy test is commonly done first to screen. You seem to still have your bumps from the acupuncture![/QUOTE]

I haven't had any sores (which seems to be one of the must haves). so maybe not this but the sarcoidosis seems like a reasonable thing to test for.
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Old 05-03-2019, 05:30 AM #58
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Default What medication did you take to help alleviate symptoms.

[QUOTE=jurgen975;1138389]
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Originally Posted by canagirl View Post

Dont give up Canagirl i remember that when my symptomes started i had i had my moments dispare.
My symptomes where surtanly not so severe as your ones but i had stiff hand and feet.
Pain in my feet hands when i woke up in the morning,stiffens like wont believe.
Burning pain pain in my nerve endings very similar to a carpal/tarsaltunnel syndrome.
The nerves in my feet were swollen and it felt i was walking on electricity cables.

In both my hand i had tingling while driving my car and my left hand was contracted like a claw after driving.

I had unbelievable pain in my feet the nerves in my feet got very sensitive.
Tingling and paresthesia when walking and when i was sitting down and the tingling when't sometimes on for more then 2 hours after a bit walking.

My symptoms started slow but got severe over the years.

But i can tell now that your body is healing even if you feel your nerves are in a state of inflammation.

For me the burning is gone
Tingling and paresthesia are gone
Pain is gone
What stays at this moment is some numbness and lets see if the numbness stays or will also begone after some years.

When i am going to the gym i will feel some discomfort in my hands and feet but it is not much.

I feel that because your young you have a very good change of healing because you have more stem cells in your bone marrow that people how are older so a better change of healing.

If you have any questions let me hear them
Hello Jurgen975,

The symptoms you list are the same symptoms that I am having. It sounds like you were able to heal. Can you please share the medication and dosage that you were on which helped you?

Many thanks
Sancerre
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Old 05-03-2019, 11:16 AM #59
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[QUOTE=sancerre;1275060]
Quote:
Originally Posted by jurgen975 View Post

Hello Jurgen975,

The symptoms you list are the same symptoms that I am having. It sounds like you were able to heal. Can you please share the medication and dosage that you were on which helped you?

Many thanks
Sancerre
try sending Jurgen 975 a message. they might not see your post for a while
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