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Old 04-27-2015, 07:18 PM #41
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Wow, that's a long story of pain. I feel for u. I am so happy ur pain is improving and u r getting better. That's wonderful to hear. Yes, it's truly amazing how the body can heal. I try to keep hope but every week brings new symptoms.
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Old 04-27-2015, 07:26 PM #42
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Wow, that's a long story of pain. I feel for u. I am so happy ur pain is improving and u r getting better. That's wonderful to hear. Yes, it's truly amazing how the body can heal. I try to keep hope but every week brings new symptoms.

I understand and felt the same way. The third surgery -Just shoot me! Lost hope several times and went through a deep depression but truly feel I am on the other side of it now. I basically refused to give up, though I sure cried a lot for a while. I am still a bit paranoid that things may regress, re-grow, etc. The fibroma could wake up or God forbid I have any kind of injury. I will always need to be careful and watch medications I take in case they are neurotoxic, no alcohol, good diet, etc. I will say Cana that even when you don't have Hope, I and others here still have Hope FOR you...so see you are never really hopeless.
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Old 04-27-2015, 07:52 PM #43
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How was ur fibroma diagnosed?
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Old 04-27-2015, 08:06 PM #44
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It was palpable under the skin of my sole, a small painful nodule. The location and history of injury was kind of a give away, occasional people (with proliferative tendencies, didn't know I had those) react that way. diagnosis was certain with biopsy after first resection. Never would've messed with it but the sucker was in a bad spot and painful! Over one inch and I could've dealt with it.

Meant to say earlier that the nerve problems I developed early on with all the swelling from the rupture included buzzing that eventually spread to my whole left side and fasiculations. I was in major overdrive even before the official nerve injury. The buzzing and fasiculations did calm down over time.
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Old 04-27-2015, 08:07 PM #45
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domperidone
WOW...Seriously??

I take the maximum dose of Domperidone every day for gastroparesis, and have for at least 14 years. I also know of at least a dozen other people who also take the max dose daily for the same reason. I (and others i know) have never had any side-effect like that (thankfully), and sorry you have.

Did this reaction happen right away or after taking it for a few years?? I will look for any signs of this now that you have brought this to my attention. Do you mind telling how much you were taking? I take 20 mg 4 times a day (so 80 mg total/day).
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Old 04-28-2015, 06:56 AM #46
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WOW...Seriously??

I take the maximum dose of Domperidone every day for gastroparesis, and have for at least 14 years. I also know of at least a dozen other people who also take the max dose daily for the same reason. I (and others i know) have never had any side-effect like that (thankfully), and sorry you have.

Did this reaction happen right away or after taking it for a few years?? I will look for any signs of this now that you have brought this to my attention. Do you mind telling how much you were taking? I take 20 mg 4 times a day (so 80 mg total/day).
I took 20mg 3x/day. I also mixed this with a herb and I think the combo was too much. It started after about 2 minths
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Old 04-28-2015, 07:04 AM #47
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What herb did you take?

Domperidone is not approved for use in the US. It however, can be compounded independently by compounding pharmacists.

There is one anecdotal paper on a movement disorder in an elderly patient on PubMed:
http://www.ncbi.nlm.nih.gov/pubmed/21852591

However, this seems unlikely for the vast majority of patients using it.

more information here:
http://www.drugs.com/cons/domperidone.html

This is a heavy duty drug...taking ANYTHING with it could cause a potential interaction. Herbs especially can be dangerous with RX drugs.
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Old 04-28-2015, 07:14 AM #48
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I often wonder if there is something growing or causing inflamation at my needle sites. There is just so much going on in those areas, I think maybe something is impeding healing.
What would test for that?
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Old 04-28-2015, 07:20 AM #49
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Wow, that's a long story of pain. I feel for u. I am so happy ur pain is improving and u r getting better. That's wonderful to hear. Yes, it's truly amazing how the body can heal. I try to keep hope but every week brings new symptoms.
I am hopeful. Maybe delusional. I am getting ready to cope with the day after hours of sleepless pain. The stinging in my legs was so deep and wicked. While the stinging went up from the bottoms of my feet and all the way up to my knees, my lower back joined in sending shooting pains down to my thighs. That wasn't enough though- I had some fireworks of new abdominal side stabs.

I am hopeful though this discourages me. I know what you mean about every week bringing new symptoms. I want to think I am getting better. Some things are definitely better than they were. I literally could not drive for 4 months. I couldn't chop a carrot. It was constant excruciating debilitating pain, dizziness, and cognitive and vision issues. Some things are better but some things are worse. I know for sure I am coping with it better than I was. My pain through out the day is constant and nagging with migrating flares of shooting and stinging. I have to fake my smile most of the time. Sometimes I do feel bits and pieces of my real personality which I couldn't find for almost half a year, so that is definitely good.
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Old 04-28-2015, 07:22 AM #50
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I often wonder if there is something growing or causing inflamation at my needle sites. There is just so much going on in those areas, I think maybe something is impeding healing.
What would test for that?
It's crazy that the needle spots can be seen months later.
Maybe some kind of bacterial infection? Can you get your blood rechecked?
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