Thanks for your reply, Ken.

I too have tinnitis - quite severe at times. ENT says nothing that can be done for it.

Will start on B12 as soon as blood work comes in.

And as for the magnesium; it is contraindicated for myasthenia gravis; however at this point I am willing to take a chance on it, to see if it helps with the cramping.

That old saying come to mind:
Desperate people do desperate things. The pain I have been having most recently has been so severe; probably in the top 3 of different pain I've had over the years. Because of myasthenia gravis I am limited as to what kinds of pain meds I can take. So guess I am feeling pretty desperate at this time.

Ordered the Mortons lotion on recommendation of another person in this forum; should have it in a day or two.

Thanks again for the info.

Questions:

Is this a "red flag" symptom of PN?
Bilateral pain and burning, etc.?


And dropping items often?
Often! Items slipping through my hands? Inability to pick up things with fingers? Until now, I thought I was just being a klutz. Now wondering if this is PN also. Didn't mention to my docs.

Pill bottle I picked up today slipped through my hands and I had about 30 capsules all over my bathroom floor. Fingers would not "work" to pick them up. Uggghhh......hope I got all of them because I have a curious cat....


I have a billion other questions as a newbie. Will save the others for later.

Thanks again.

the burning pain, is a symptom of neuropathy, have you been checked for diabetes(diabetes nueropathy also starts out as burning pain, at the extremeties. Some people have trouble with metabolizing methycobalamin, but i heard that the hydroxycobalamin is best for absorption, i think you can buy it, its the most natural form.

This statement is inaccurate. Methylcobalamin is the active form, and Hydroxocobalamin is an intermediate form, and needs to be activated in the body to either of the two active forms, methylcobalamin and adenosylcobalamin. Methylcobalamin, adenosylcobalamin and hydroxocobalamin are all available orally without a prescription.(cyanocobalamin is synthetic and is also available orally without a prescription.)

http://en.wikipedia.org/wiki/Hydroxocobalamin


Posters here have a responsibility to post accurate information to others when the post is scientific in nature and not just an "opinion".
You may post a link to illustrate your comments, and I suggest, that you, neuroproblem, do that in the future to avoid confusing people here. It appears to me that you may have some cognitive problems too, that need addressing by an appropriate doctor, along with your other health issues.

B12 chemistry is complex and difficult to understand. So I strongly suggest you post links to support any factual comments you make here about it, or other medical subjects. Our guidelines do not allow for long quotes from other sources. You may quote a short example passage, and follow with the appropriate link. Otherwise we have to edit for copyright compliance.

This is a link to our guidelines:
http://neurotalk.psychcentral.com/thread1293.html

And this is a link to how to post copyrighted information.
http://neurotalk.psychcentral.com/thread37384.html
When you visit a page scroll down to the details at the bottom, or click on their privacy areas if available, and read their copyright rules. Some places like Medscape do not allow even a short quote. So for those I just give a link.

And dropping items often?
Often! Items slipping through my hands? Inability to pick up things with fingers? Until now, I thought I was just being a klutz. Now wondering if this is PN also. Didn't mention to my docs.

Pill bottle I picked up today slipped through my hands and I had about 30 capsules all over my bathroom floor. Fingers would not "work" to pick them up. Uggghhh......hope I got all of them because I have a curious cat....


I have SFN and yes I have a problem holding on to things.....lol....the dropping of pill bottles isn't fun is it ? I have 2 dogs so I try to get them up as quickly as possible. I drop things all the time or knock things over. Trying to pick up change is the pits and can get very frustrating to say the least. I am an almost 53 year old lady and I have to wear pull over shirts....I have trouble with buttons.

I also have not worn shoes in 2+ years. I have to wear those slip on sandals with adjustable strips across the top of my feet. At home I am most comfortable in socks with my feet flat on the floor.

Hope some of this info helps you I've been keeping up with your posts and am glad to have you on board but sorry for the reason you are here with us.

Take care.

Debi from Georgia

Yes, I have a "dropping" problem too. I have to think carefully before doing a complex hand task. So I understand completely...