NeuroTalk Support Groups - Anyone gets loss of smell with neuropathy?

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- - Anyone gets loss of smell with neuropathy? (https://www.neurotalk.org/peripheral-neuropathy/219470-loss-smell-neuropathy.html)

Quote:

Originally Posted by mrsD (Post 1139329)

Neuroproblem... I have a suggestion for you. From reading your posts, I suspect you are not communicating well with your doctors.

It is not common for patients to describe symptoms like you are doing here. I know that males tend to get better attention from doctors than females...this is a well known thing. And some males are vague about symptoms too... it can be a cultural thing. (my husband is like this). If you are telling too many details to your doctor, she is going to see this as a red flag leading to her diagnoses.

But telling a doctor that you cannot feel your "organs", etc is very odd. Normally we do not feel our organs...they run on the autonomic nervous system for the most part.

Sometimes people don't get a nausea warning before vomiting.

Sometimes people get only severe nausea and no vomiting.

You did get a warning because you made it to the sink in time.

That suggests you had a normal reflex, but just little time to think about it. Often viral stomach flu is quick and severe like this. Food borne illness would give some cramping as a warning sometimes.

Continuing to blame Benadryl for your other symptoms, is also not in your favor. Most likely the virus you had may have been a trigger for your current problems. So just tell any new doctor, that you had a virus and since then you lost your sense of smell, etc. Leave the Benadryl out... as it is a DETAIL that YOU find important. You need to let your doctor decide what is important.

Doctors today don't have the time to ferret out details unless there is a good reason to do so. Most illnesses, are self limiting, they know, meaning that the body will heal, and get better on its own. The patients however, expect doctors to do something every time they visit the doctor's... so this often causes conflict and misunderstanding. If the doctor does not explain, self limiting, to the patient, the patient may think they are being ignored. Not all doctors are perfect communicators either!

It is really important to communicate carefully these days or this might happen to you (or has already started to happen)...

http://neurotalk.psychcentral.com/sh...ght=factitious

Thanks for the link to the older post and I agree with the original poster in that thread. I've learned to simply lay out the symptoms and don't go into anything else. This helps the doctor focus on the symptoms at hand.

Quote:

Originally Posted by UTGrad (Post 1139711)

I learned that the hard way, now that my pcp(she makes all these assumptions now) thinks its all mental problems, because im giving too much details(kaiser records and my symptoms around the time i suspected lyme). The opposite can also be true, giving too little details can result in a misdiagnosis. without a ct/ cat or MRI scan, its only going to be guessing game, scans can help rule out any structural defect, by it probably wont rule anything hormonal, immune related.
@Zatochi, you either are able to have a much more acute sense of smell, or you have a condition called phantonosmia or phantom smell, where you smell things that arnt actually there. People with head injuries have this as a common after effect. mine just sharply went from very good sense of smell, to basically so weak, its barelly registerable, and sometimes it goes too 99%, and stays around 10% at the max. it never goes to normal. Of course my neuropathy and loss of sensations is still here. its kinda freaky how you cant feel a full bladder or empty bladder "after you pee", or your stomach is empty, and you cant get that hunger feeling. Since this category is peripheral neuropathy, my symptoms could also be autonomic neuropathy as well, since it also involves myclonic and hypnic jerks, as well as unsual twitching. SINCE smell and taste are linked, my taste has been affected as well, because food has only a mild taste, if its a strongly flavored or aroma food.

My food poisoning couple days ago maybe a result of of my loss of smell, because i wouldnt be able to taste spoiled food.

It's allergy season here in Tennessee. Our tree and grass pollen counts are extreme. You can literally see films of pollen on vehicles in the morning. This time of year greatly affects my sinuses so I've had greatly reduced sense of smell lately.

Wife and I had a date night last Friday to a nice restaurant. Unfortunately I could barely taste the 8 oz filet I ordered. They tell me it's good. I'll be sure and give a positive review on the food texture of asked.

Case in point...breathing this stuff will make it hard to taste anything.

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