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Old 04-28-2015, 04:06 AM #1
Neuroproblem Neuroproblem is offline
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Default Anyone gets loss of smell with neuropathy?

I notice people on here dont get loss of smell with neuropathy, mY SYMPtoms began the same time as my neuropathy, and have been at the same position i was in for 4 months already. MY LOSS of smell , now is extremely weak, my right nostril cant smell anything at, and my left nostril can smell slightly. My neuropathy is ongoing, and coming up with random symptoms. Sometimes pins and needles, another day will move on to random joint pain, prickly, a stabbing sensation. The wierdest part aside from my loss of smell, is my severe loss of sensations within my body(soft touch sensations, vibrational) sometimes i "feel" like my right arm is not even there, or appear weightless.

My presentation of symptoms are very different from other people on this category, and i cannot find anywhere online fitting my symptoms, except maybe diabetic neuropathy, some random autoimmune disease, b12 deficiency( a blood test i cant even see for myself).

I also i have a problem with my pcp, that ive been posting in the past about, refusing to listen to my symptoms. Made up her mind of what i have(mental problems). Constantly changing the subject, as to divert me away from trying to find out the cause. I have an ophtamologist this Thursday, that i believe it was referred in error(a neuro or a rheumy i felt was more appropriate)
loss of smell and and internal sensations, are constant, it had not changed in months.
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Old 04-28-2015, 06:58 AM #2
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One of the first questions my neuro asked me yesterday was if I had any loss of my sense of smell or the way things taste. I can't believe your pcp thinks you are not experiencing this.
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Old 04-28-2015, 12:20 PM #3
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Thumbs up Sensation variation caution

I did not lose sense of smell, although I think it might have changed. When I was going to a Chiropractor he said that if I ever felt like I could not feel my butt contacting the toilet that I should take action. We were thinking that trauma may have been done to the Cauda Equina (horses tail). I agree with previous poster that loss of smell should perk up the ears of a Neuro. Don't give up, I have been to three, you can learn how not to freak them out and get them to work for you. Good Luck, Ken in Texas.
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Old 04-28-2015, 04:12 PM #4
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At the onset of my symptoms, I had the opposite effect. I was hypersensitive to smells. I pretty much stopped eating and dropped weight.
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Old 04-28-2015, 04:43 PM #5
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I guess i have to tell the opthamologist this. I heard of people getting hypersensitivity to smells, usually due to infections or not. She doesnt believe i have it because i keep saying the symptom cycle, i should been more clearer and said pins and needles.
the loss of smell and sensations happened all of the sudden. hOPEFULLY THE eye doctor can refer me to a neuro or at least rheumatologist, but it really takes several months to get a appointment, and i dont want to be referred to the same PCP, that thinks its all in my head, She had no interest in diagnosing me other than with a mental problem, she kept changing the subject.
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Old 04-29-2015, 07:34 PM #6
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New dx of PN here.

Yes, loss of smell (of almost everything) and now I realize my sense of taste is off.

Recently cooked something for a friend; said it was a little too spicey! I thought it was too mild. Hmmmm........
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Old 04-30-2015, 12:38 AM #7
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Quote:
Originally Posted by SoftTalker View Post
New dx of PN here.

Yes, loss of smell (of almost everything) and now I realize my sense of taste is off.

Recently cooked something for a friend; said it was a little too spicey! I thought it was too mild. Hmmmm........
I was looking at this forum specifically, but none of them had neuropathy and loss of smell at the same time, My PCP was no help at all, in fact i think she was trying to divert from the actual diagnosis. My loss of smell has not come back, in the 3.5 months, it went approximately 30-50% in the first few weeks, but essentially went to 5-10%, i have looked online that smell loss of taste does not come back easily or at all.
The other strange thing, nobody here has loss of soft sensations in your organs, usually you can feel when your eating or peeing, i can barely detect. I still think this has something to do with the diphenhydramine i took, but im not sure.

Yesterday i developed food poisoning, and i did not feel the urge to vomit, until my stomach involuntarily contracted and my dinner came out at the sink, i puked 2 more times, and had diarrhea as well. note, i could barely feel it, only when its about to come out.
Ill have to tell the opthamologist about my other symptoms, that arnt eye issues, whether or not he will help me is beyond me. I have a feeling, "ask your pcp" to refer to another specialist. I know she is just dragging me along in the hopes i accept your mental disorder diagnosis, which i find pretty offensive, She was unwilling to do other tests. being in a welfare system sucks pretty much, because you have no say as to what tests or doctors you can see.
The only other provider i believe, is anthem blue partnership plan,(find your own doctors),i have heard horror stories about that insurance group though.
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Old 05-03-2015, 07:22 PM #8
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It's allergy season here in Tennessee. Our tree and grass pollen counts are extreme. You can literally see films of pollen on vehicles in the morning. This time of year greatly affects my sinuses so I've had greatly reduced sense of smell lately.

Wife and I had a date night last Friday to a nice restaurant. Unfortunately I could barely taste the 8 oz filet I ordered. They tell me it's good. I'll be sure and give a positive review on the food texture of asked.
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Old 05-04-2015, 10:51 AM #9
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Case in point...breathing this stuff will make it hard to taste anything.

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