Statins are not on the list because there is a very small risk to people who have CMT. It's up to the doctor and the patient. I would not take them. "Normal" people take them and it can cause weakness. I know a few people who do not have CMT that this has happened to while taking them. There are drugs which cause weakness which is unrelated to a worsening of neuropathy. In rare instances they can cause muscle damage and therefore could make a CMT patient worse even though the effect is not on the nerve itself. It is still advised not to take them as far as a person with CMT is concerned. It just makes sense to avoid them if at all possible. Most of the drugs on the medications alert list fall into this category. Other drugs on the list though are not for a CMTer at all.

I was on Cipro for six months 15 years before my idiopathic peripheral neuropathy symptoms appeared. Neuros say it was likely not the cause but I don't think anyone knows for sure.

My signature line explains mine

Statins are not on "lists" because doctors follow the "standard of care" concerning treatments. As long as statins remain politically high in treatment of heart disease, few doctors will stick their necks out and reveal the damage statins really cause.
(due to fear of liability concerns).

This is changing slowly as the link I put up the other day
listed statins as demyelinating:
http://jnnp.bmj.com/content/74/suppl_2/ii3.full

The UK article about statins doubling incidence of Parkinson's is also new.

I suspect we will see more dirt and truth about statins coming up in the near future.

I should have clarified. Statins are not on the neurotoxic medications list for CMTers because they are a very small risk for CMTers. However, they still advise a CMTer not to take them. As I posted before, they can make a CMT patient worse (weaker) even though the effect is not on the nerve itself. This information is for a CMTer.

I certainly do not need any more weakness. CMT is progressing no matter what a person does. That is so very true.

Statins affect nerves as well as muscle. Demyelinating means they damage the axons to nerves and/or prevent healing from minor damage. I would think for CMTers this would be a double whammy of sorts, not a minor issue. Whatever the process of CMT damage, you certainly don't need MORE damage from a drug, like statins.

3 of the 4 types of afferent nerves in the periphery are myelinated.
http://faculty.washington.edu/chudler/cv.html

I go by what the expert CMT doctors say. Statins do not affect the nerve itself for a CMTer. No need for me to discuss this anymore.

I have CMT and when I was briefly on Tricor five years ago my balance and strength deteriorated rapidly. My neurologist would only say "you might want to go off that", given my that my tryclcerides were over 500 she did not want to go on record as forbidding them. I took the hint and my balance did improve quite a bit. Being able to walk without falling every few feet seemed more important than theoretical heart disease in the absence of other markers.