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NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Peripheral Neuropathy (https://www.neurotalk.org/peripheral-neuropathy/)
-   -   Hot Baths (https://www.neurotalk.org/peripheral-neuropathy/219736-hot-baths.html)

twitchwitch 05-04-2015 10:55 AM
Quote:
Originally Posted by mrsD (Post 1140024)
I have to caution about heat treatments for PN....

Heat in general stimulates nerves. If you have nerve problems, then long heat treatments are in the LONG RUN going to make for more pain during the rest of the day.

My chiro explained this to me long ago. 10 minutes tops for any heat exposure (hot baths, heating pads, steam rooms).

Heat is primarily for deep muscle and joint pain. It will improve blood flow to deep areas. But for nerve pain, it is a stimulant...and will cause the pain nerves to fire more and basically irritate them.
I was told the same thing from my doctors. I LOVE the feeling of the heating pad, sauna, hot bath, it is very soothing, but I am cautious at the amount of time I spend using heat.

janieg 05-04-2015 11:25 AM
It's funny how symptoms and responses are so different. The one thing that is absolutely guaranteed to give me symptoms is being cold. The thought of ice packs makes me cringe.

It's hard to describe, but when I'm cold, I get these isolated "rushes" in various parts of my body. It's that "chill up and down your spine" feeling when you see something scary or overly exciting, only these rushes are isolated to certain areas of my body e.g. from my left rib cage up to my armpit and down my left arm to my elbow. When I'm cold, they're near constant in that area.

I've Googled "cold intolerance neurological" so many times I've lost track. I keep thinking it has to be a clue as to what's wrong, but thus far, none of the causes I've found ring familiar with regard to other symptoms or test results.

anon050715 05-04-2015 11:31 AM
Quote:
Originally Posted by janieg (Post 1140086)
It's funny how symptoms and responses are so different. The one thing that is absolutely guaranteed to give me symptoms is being cold. The thought of ice packs makes me cringe.



It's hard to describe, but when I'm cold, I get these isolated "rushes" in various parts of my body. It's that "chill up and down your spine" feeling when you see something scary or overly exciting, only these rushes are isolated to certain areas of my body e.g. from my left rib cage up to my armpit and down my left arm to my elbow. When I'm cold, they're near constant in that area.



I've Googled "cold intolerance neurological" so many times I've lost track. I keep thinking it has to be a clue as to what's wrong, but thus far, none of the causes I've found ring familiar with regard to other symptoms or test results.

Very similar to my symptoms. Cold gets me every time!

janieg 05-04-2015 02:14 PM
Quote:
Originally Posted by UTGrad (Post 1140087)
Very similar to my symptoms. Cold gets me every time!
Yep, and I'm SO happy spring is finally here.

Maybe we have CSDS...Confederate Soldier Descendant Syndrome. :p

anon050715 05-04-2015 04:36 PM
Quote:
Originally Posted by janieg (Post 1140123)
Yep, and I'm SO happy spring is finally here.



Maybe we have CSDS...Confederate Soldier Descendant Syndrome. :p

They say Jefferson Davis had ill health for years and years after a malaria bout that killed his wife and almost killed him. I guess back then the doctors were very limited in what they could do so you simply prayed and trudge the road each day.

madisongrrl 05-04-2015 07:03 PM
Quote:
Originally Posted by janieg (Post 1140086)
It's funny how symptoms and responses are so different. The one thing that is absolutely guaranteed to give me symptoms is being cold. The thought of ice packs makes me cringe.
I get symptoms if my shower is too hot but I also get them if the weather is too cold. My feet burn when the weather is below 20 degrees and I can't seem to be warm even when dressed appropriately. It's hard because I was such an outdoors person - downhill skiing, snowboarding, snow biking, snowshoeing etc. I also get purple fingertips even when exposed to a small amount of cold. 45 to 65 degrees seems to be the sweet spot to exist in.

beatle 05-04-2015 07:59 PM
Quote:
Originally Posted by janieg (Post 1140086)
The one thing that is absolutely guaranteed to give me symptoms is being cold...I get these isolated "rushes" in various parts of my body. It's that "chill up and down your spine" feeling when you see something scary or overly exciting, only these rushes are isolated to certain areas of my body...When I'm cold, they're near constant in that area.
I experience this too.

janieg 05-04-2015 08:26 PM
Quote:
Originally Posted by beatle (Post 1140204)
I experience this too.
Thanks for chiming in, beatle. I thought I was the only one that had this weirdness as I've never seen anyone else talk about it.

Lukesmom 05-05-2015 01:03 PM
Quote:
Originally Posted by janieg (Post 1140210)
Thanks for chiming in, beatle. I thought I was the only one that had this weirdness as I've never seen anyone else talk about it.
You are not alone in this, I have this sensation when cold as well!

janieg 05-05-2015 07:42 PM
Thank you too, Lukesmom. They are so hard to describe, but I'm glad others recognized my description.


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