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-   -   Recovery (https://www.neurotalk.org/peripheral-neuropathy/21978-recovery.html)

daniella 06-18-2007 11:42 AM

I'm so happy for you and wishing you continued relief.

Adastra 06-18-2007 01:57 PM

Hi Aussie99

I am very pleased for you and hope very much that the improvement is permanent.

Maybe I missed this in another of your postings but I would just like to know when you started with the thiamine and have you kept it at 200mg all the time?

Tony

Aussie99 06-18-2007 04:11 PM

Tony, I started on thiamine about 2 and a half months ago.
 
I started taking 200mg every morning. I was having autonomic instability, and consequentially every time I had a meeting or went somewhere crowded,my autonomic system went haywire and I was becoming very ill. I needed to take xanax just to cope, and I was still not cured. I was living in dread.

After I started the Thiamine, I had a mandatory business meeting. I had to sit in a crammed boardroom full of people for like 8 hours straight. I didn't flip out once,and I was also very social. Did not need any meds,and did not get sick.

Normally I would be hiding in the ladies room sick as dog counting heart beats, sweating and nauseous. The illness really had a hold on me.

It was so obvious that I was recovering at that point. I had more and more
situations that were similar, and my health was normal. So I thought I must post on the forum and let everyone know about my discovery. I have had autonomic problems for over 2 years now,unexplainable.

Aussie99 06-18-2007 06:59 PM

I have a bit more time to write now.
 
With this illness healing is a very slow process,as we all know we have to look back retrospectively to notice any improvement. With my situation, that day in the boardroom was a milestone day. I knew that things were very different for me and I must have had considerable healing since starting on Thiamine, in order to bear that situation.

I knew my autonomic system had been damaged by PN, but the symptoms were fleeting and hard to prove,as is the PN in general. Being stressed sent off a chain reaction of events in my body that affected me systemically. I was unable to handle even tiny amounts of stress. Symptoms included palpitations,elevated BP,anxiety,flushing,malaise,fatigue,trouble breathing. Consequentially I became agoraphobic because I was afraid of making an *****
out of myself in public,and then I had additional panic and anxiety from social phobia.

Everytime I was in public or in a setting where I was far from my comfort zone I would become quite ill. I was full expecting to walk into that meeting and get sick,and wind up making up some excuse to leave early. But it didn't happen,and it hasn't happened since.

Now am I certain that it was the Thiamine? I don't know? All I know is that I have been a very ill person who finally felt a bit of relief.


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