NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Peripheral Neuropathy (https://www.neurotalk.org/peripheral-neuropathy/)

- - Ivig (https://www.neurotalk.org/peripheral-neuropathy/219851-ivig.html)

Quote:

Originally Posted by northerngal (Post 1143088)

I believe you would have to have some sort of diagnosis that involves the immune system. Even then, only certain ones are approved for IVIG. If your neuropathy is not caused by some sort of immune system malfunction then most likely the IVIG wouldn't make a difference.
When unsure some doctors like to try 3-4 rounds to see if it makes a difference. But to do this they need to give you a diagnosis that your insurance will cover.
If it's questionable that your neuropathy immune related then ask your Dr. Dx you with CIDP to get it covered.

Not sure if my doc would do that, but in addition to that, I think the insurance would want to see EMG's and other lab results to prove it. I have UHC.

Yep, you are correct!! Due to cost, most insurance Co's want proof...labs AND test results (skin biopsy EMG/NCS, etc).

I'm actually laying on my sofa after having IVIG the last two days. I've been getting them for about a year and a half. I wasn't sure if they were working and I stopped for a few months last summer. I went into a flare after a while. It appears to be working for me.

The treatment is a little hard for me. It feels like a war is going on in my body for a few days but then I start to feel better. My neurologist had a hard time getting it approved so my rheumo tried and got it approved.

How my doctor explained it was the IVIG fights my own antibodies to get them off my nerve endings for a while. It's is suppose to slow down or halt the progress of nerve damage.