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Old 05-14-2015, 12:53 PM #41
KnowNothingJon KnowNothingJon is offline
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I see. I record for myself and to note progression, possible food connections, and so on.


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I urge you to please notice when you are happy, and exclaim or murmur or think at some point, "If this isn't nice, I don't know what is." - Kurt Vonnegut
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Just because I cannot see it, doesn't mean I can't believe it! - Jack Skellington
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Old 05-14-2015, 01:04 PM #42
jenng jenng is offline
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I have the vibrations, noticeable at night when I'm going to bed and now it's present in the morning when I get up. When I'm up and around I don't notice it. I also have benign fasiculations. I have a mixed bag of large & small fiber neuropathy. The muscles in my left foot have motor neuropathy, so no surprise they twitch. Elsewhere, I have twitches come and go in different patterns and strengths. I'm told these are benign and just a product of an overactive (read messed up) nervous system.

I had the 1 hour oral glucose tolerance test along with hA1C both were normal. I'm doing a low carb gluten free diet anyway. Can't hurt!
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Idiopathic Sensorimotor Polyneuropathy
Atypical Migraine
Chiari 1 malformation 7 mm
PLIF L5-S1 Sept. 2013

Lumbar MRI March 2013: degenerative changes from L3 to S1. L3 and L4 have tiny annular tears with disc bulge. L5-S1 bilateral pars defects anterolisthesis (spondylosis/spondylithesis?) I have an annular tear here too, along with a conjoined left L5-S1 nerve root. Mild effacement of the thecal sac at the origins of the bilateral S1 nerve roots, left greater than right. Mild bilateral Neural foraminal stenosis.

Last edited by jenng; 05-14-2015 at 01:07 PM. Reason: spelling
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Old 05-14-2015, 06:54 PM #43
JoannaP79 JoannaP79 is offline
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[QUOTE=canagirl;1141577]Does anybody feel like their body shakes or vibrates all the time?

Hi canagirl, I get 'good vibrations' throughout my body. It doesnt hurt but feels weird and a bit unsettling. Thats how my problems started to be honest before any pain or other weirdness set in. The first complaints I made to my rheumatologist was about vibrations through my body and he didnt have a clue what I was on about. I think at this point I was put in anxiety corner.

Good luck with the SFN test.
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Old 05-15-2015, 05:34 AM #44
canagirl canagirl is offline
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Do Any meds make the vibrating stop?
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