Thanks Ragtop for starting this thread and thanks to all those that posted to it.

Nice to read about some "happy" stuff on NT.

Great thread. I am a truly lucky individual, so even my really bad days health-wise, can still be some of my best days, because I have people in my life and things that I love that make it so.

For instance, a few months back, I had a horror of a day with head to toe pin pricks and pain, even in my throat, mouth, and eyes. It was a bad flare, and I was fearing it was my "new normal". I broke down on my couch, telling my husband that it wasn't fair and I don't think I can do this for the rest of my life. He just held me, looked me in the eye, and said no matter what, everything is going to be fine, and we always find a way to feel good again.

Afterwards, he ordered pizza (I typically am very careful with my diet-but I love food-and sometimes, you just need a pizza haha), put on a Stephen Hawking documentary, and (very gently!!) held me on his lap with a (very soft! haha) blanket around us. By the end of the documentary, you would have had to shoot the smile off of my face. I love science, and learning about space and the universe-something about it really puts things into perspective for me. It helps me to separate from myself a bit. That memory is so bright and so full of love, it makes me smile every time I think of it, even though I felt terrible physically.

My flare started diminishing over the next couple of days

In general, I keep myself very busy, as it helps me to stay out of my head. I love reading, I'm an artist, I do a few crafting type things, I love cooking, and now neuropathy has spawned a new interest, and I've started making (and even selling) my own body lotions, bars, etc. Keeping my brain full and heavy is always a big thing for me. We're buying a house right now-so I'm looking forward to even more crafting and hobbies-redoing floors, painting, etc.

Thanks for your story ellsac - its great to hear that you can still do so many of the things you love. Staying busy does seem to be a good way to remove yourself from some of the pain.

Well...some of it is sheer stubborn will that I will often pay for haha-but to me at this point, it is worth it. I want to enjoy as much as I can while I can.

Time to Bump up this wonderful Thread!

Anyone with any stories?

Dave.

[QUOTE=pinkynose;1169212]I escaped the heat today by going to the movies with my oldest and dearest friend. We saw the new Meryl Streep movie, Ricki and the Flash. It was tremendously uplifting and I cried happy tears at the end.
Sorry no stories. I hope you'll accept a wonderful day.

Ok I am newly diagnosed and I most definitely need this post. Sorry to be selfish but I need to know there are good days weeks months years etc.

Last night my little guy asked me to go for a walk around the neighborhood. Despite my miserable feeling feet, I said yes. I'm so glad I did.
Our cat (who acts like a dog) came as she always does and it was so cute to see them exploring the wildlife together. Everywhere my son went, the cat galloped along. We saw about 15 frogs and a huge snake. Although it couldn't be a long walk, it turned out to be quite eventful for the kids, and the cat.

I just had a great moment in a really crappy series of days and I believe that is as noteworthy, if not more so than a whole great day.

Mine involved my family, as it is likely to 99.9 percent of the time. Bed time after "new math" 4th grade edition review. My daughter likes to high five me, with some umph. It is also a measure of how she can jump.

Her pre K bound brother was about, saw the activity and wanted in. He kept stepping in front of her, cutting off her leap up in the air. She is tall, but not quite 10. I am 6'2" and my arm was fully extended.

The boy was like an air rifle range target, to Mom, drawn back to the whack of Dad's hand against his sister's.

She has patience that must come from her Mom, as she waited for him to clear out before her final run. My hands as numb as they are felt the sting after hit 3.

It was just some simple, chaotic family bed time. It was perfectly wonderful, though. Just as the five minutes down by the water before work in a gentle breeze before the chaos of the day can be.

I hope we get this thread to 25 pages of full days of glorious remission of symptoms. But sometimes it might just be a perfect breath or a nice pull off coldest, most satisfying bottle of water ever.

My hand is still a bit red.

Jon

I really don't measure my days. I am so limited now and getting older by the minute, I just try to do something or learn something new, that pleases me. We are blessed that we have lots of nature all around our home here, in a woodsy oasis in the congested city...that I can have flowers, and my birds etc.

What I would like to measure though is my nights! When I have a good night, and good restorative sleep, that is one for the books.
Hubby and I compare each morning how our night has been!
This is what old people do, I guess.