advertisement
Reply
 
Thread Tools Display Modes
Old 06-13-2015, 09:59 AM #1
Healthgirl Healthgirl is offline
Member
 
Join Date: Dec 2014
Posts: 791
8 yr Member
Healthgirl Healthgirl is offline
Member
 
Join Date: Dec 2014
Posts: 791
8 yr Member
Default Update- not so good

Yesterday I was standing in the shower and I felt like I was stabbed in the neck with an ice pick. The pain radiated through my right side head, upper back and through my shoulder. I have been up all night with severe pain and my pulse is throbbing very intensely. Muscles twitching like crazy and incredibly weak.

This is how my onset was. I never thought I would go through anything like this again. I was doing so well and thought I was recovering. I cannot move my neck and my nerves through out my body are flared up. I hadn't had to take pain meds during the day since February. Yesterday I had to take them all day and even the narcotics aren't helping. I am going to call my neuro and ask when I can start steroids. If I have a bad reaction from the steroids, I will contact the lyme dr. and take what ever he wants to give me.

I was excited about life again. Feeling like me. I could see straight, drive, take care of my kids, do my housework.

I don't know what is going to happen and if I am about to be debilitated again, but I feel exactly like I did in September. This pain is absolutely unbearable.

As far as the diet goes; I felt hungry all the time so I did add a small amount of low lectin/ phytate starches back into my diet, but I really can't imaging that is why I am in this situation. I was doing better before I even implemented the diet than I am right now, so.....
Healthgirl is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
canagirl (06-13-2015)

advertisement
Old 06-13-2015, 10:22 AM #2
KnowNothingJon KnowNothingJon is offline
Member
 
Join Date: May 2014
Location: Buffalo, NY
Posts: 543
8 yr Member
KnowNothingJon KnowNothingJon is offline
Member
 
Join Date: May 2014
Location: Buffalo, NY
Posts: 543
8 yr Member
Default

I am so sorry to read this. I hope you find some relief soon. I know how hard it is for me to sleep when "flaring". I take melatonin and try to calm myself.

I wish I had more comfort than to share that for me it intensifies and abates back to the plateau or most of the way back. The fatigue that accompanies it all is equally difficult.

Thinking peace and comfort with you in mind.

Jon
__________________
I urge you to please notice when you are happy, and exclaim or murmur or think at some point, "If this isn't nice, I don't know what is." - Kurt Vonnegut
"It's an art to live with pain, mix the light into grey"- Eddie Vedder
Just because I cannot see it, doesn't mean I can't believe it! - Jack Skellington
KnowNothingJon is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
canagirl (06-13-2015)
Old 06-13-2015, 11:24 AM #3
canagirl canagirl is offline
Member
 
Join Date: Mar 2015
Posts: 503
8 yr Member
canagirl canagirl is offline
Member
 
Join Date: Mar 2015
Posts: 503
8 yr Member
Default

I am so sorry to hear this. I was hoping that we hadn't heard from you because your diet was really helping you. If it abated once, then it can happen again. Take comfort in that thought, you were almost normal for many months and u will be again.
canagirl is offline   Reply With QuoteReply With Quote
Old 06-13-2015, 07:07 PM #4
janieg's Avatar
janieg janieg is offline
Member
 
Join Date: Jan 2014
Location: Maryland
Posts: 792
10 yr Member
janieg janieg is offline
Member
janieg's Avatar
 
Join Date: Jan 2014
Location: Maryland
Posts: 792
10 yr Member
Default

So very sorry to hear of your setback. Not good news, and I feel for you.
janieg is offline   Reply With QuoteReply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Another *Good* PT Update! heybro Thoracic Outlet Syndrome 5 06-18-2013 01:29 AM
Very good update on my brothers grand son doydie The Stumble Inn 2 11-24-2012 11:18 AM
Good bye Tramadol update januarybabe Peripheral Neuropathy 2 08-29-2012 06:15 PM
My update, good news! cheergirl Traumatic Brain Injury and Post Concussion Syndrome 2 08-31-2011 02:45 AM
Life is GOOD!!!! & an Update on me! JoeMac Multiple Sclerosis 18 12-04-2008 11:30 PM


All times are GMT -5. The time now is 08:15 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.