advertisement
Reply
 
Thread Tools Display Modes
Old 06-27-2015, 06:51 PM #11
Kitt Kitt is offline
Grand Magnate
 
Join Date: Aug 2006
Posts: 4,428
15 yr Member
Kitt Kitt is offline
Grand Magnate
 
Join Date: Aug 2006
Posts: 4,428
15 yr Member
Default

CMT is of the Peripheral Nervous System (PNS) which is outside of the brain and spinal cord (CNS) Central Nervous System. CMT is just one kind of neuropathy (also called peripheral neuropathy) meaning simply that the peripheral nerves are damaged. There are many other kinds of neuropathy.

CMT is the most common "inherited" peripheral neuropathy. There are over 70 types of it identified so far with no end in sight. CMT is complicated. Many do have numbness in their wrists, hands, arms, feet, legs, etc.

Again, I am in no way suggesting that Lukesmom has this in her family. Hopefully, she will find an answer.
__________________
Kitt

--------------------------------------------------------------------------------------------------------

"It is what it is."
Kitt is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Lindyloo (06-28-2015), Lukesmom (06-27-2015), Susanne C. (06-27-2015)

advertisement
Old 06-27-2015, 07:17 PM #12
Susanne C. Susanne C. is offline
Member
 
Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
10 yr Member
Susanne C. Susanne C. is offline
Member
 
Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
10 yr Member
Default

CMT is rare enough that doctors often miss it unless you mention a family connection. If there is a connection, if your father even has mild symptoms, it is worth mentioning. Many older people are quite stoic about symptoms and attribute them to arthritis and general aging. Your uncle certainly sounds like a CMT checklist.
Does your dad have any peripheral numbness or weakness? As Kitt said, it doesn't skip a generation and has to be inherited from someone with it, but it can be quite mild in one generation and severe in another. My father had a more average case, but my half sister and I have it quite severely.
So many of us here suffer for many years without a clear diagnosis that it is worth considering CMT IF the profile applies.
Susanne C. is offline   Reply With QuoteReply With Quote
Old 06-27-2015, 08:54 PM #13
Lukesmom Lukesmom is offline
Junior Member
 
Join Date: Jan 2015
Posts: 32
8 yr Member
Lukesmom Lukesmom is offline
Junior Member
 
Join Date: Jan 2015
Posts: 32
8 yr Member
Default

Quote:
Originally Posted by Susanne C. View Post
CMT is rare enough that doctors often miss it unless you mention a family connection. If there is a connection, if your father even has mild symptoms, it is worth mentioning. Many older people are quite stoic about symptoms and attribute them to arthritis and general aging. Your uncle certainly sounds like a CMT checklist.
Does your dad have any peripheral numbness or weakness? As Kitt said, it doesn't skip a generation and has to be inherited from someone with it, but it can be quite mild in one generation and severe in another. My father had a more average case, but my half sister and I have it quite severely.
So many of us here suffer for many years without a clear diagnosis that it is worth considering CMT IF the profile applies.
I'm sorry I didn't make it clear that my Dad passed away over 10 years ago and didn't have neuropathy that I knew of. I definitely resemble him and his side of the family. I sure appreciate all of the input everyone has given.
Lukesmom is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kitt (06-28-2015), Susanne C. (06-28-2015)
Old 06-28-2015, 10:39 AM #14
Susanne C. Susanne C. is offline
Member
 
Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
10 yr Member
Susanne C. Susanne C. is offline
Member
 
Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
10 yr Member
Default

Quote:
Originally Posted by Lukesmom View Post
I'm sorry I didn't make it clear that my Dad passed away over 10 years ago and didn't have neuropathy that I knew of. I definitely resemble him and his side of the family. I sure appreciate all of the input everyone has given.
I am sorry, I am sure that you have mentioned it and I forgot. I would mention the uncle. Your father may have passed away before his symptoms became obvious, just my opinion but I think it is worth mentioning your uncle to your neurologist.
Susanne C. is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kitt (06-28-2015)
Old 06-28-2015, 11:25 AM #15
Kitt Kitt is offline
Grand Magnate
 
Join Date: Aug 2006
Posts: 4,428
15 yr Member
Kitt Kitt is offline
Grand Magnate
 
Join Date: Aug 2006
Posts: 4,428
15 yr Member
Default

I agree with Suzanne. Your father certainly could have passed away before any evident symptoms. Sorry for your loss.
__________________
Kitt

--------------------------------------------------------------------------------------------------------

"It is what it is."
Kitt is offline   Reply With QuoteReply With Quote
Old 06-28-2015, 03:42 PM #16
Lukesmom Lukesmom is offline
Junior Member
 
Join Date: Jan 2015
Posts: 32
8 yr Member
Lukesmom Lukesmom is offline
Junior Member
 
Join Date: Jan 2015
Posts: 32
8 yr Member
Default

Quote:
Originally Posted by Kitt View Post
I agree with Suzanne. Your father certainly could have passed away before any evident symptoms. Sorry for your loss.
Thank you both. I will tell Dr. when I see him next.
Lukesmom is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kitt (06-28-2015)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Pain and weakness in hands - complicated post ewizabeth Multiple Sclerosis 15 06-04-2013 11:44 AM
Weakness RavenC Myasthenia Gravis 12 08-01-2012 06:15 AM
Arm weakness betsilini58 New Member Introductions 4 03-11-2012 04:41 PM
What is the cause of leg weakness? offinthedistance Multiple Sclerosis 11 02-16-2012 12:07 PM
APDA, Omaha "Hands in Hands"...Parkinson's association to honor Dr. Gendelman Stitcher Parkinson's Disease 0 10-05-2007 10:21 PM


All times are GMT -5. The time now is 12:45 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.