NeuroTalk Support Groups - Now I think this is a microbial illness

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Peripheral Neuropathy (https://www.neurotalk.org/peripheral-neuropathy/)

- - Now I think this is a microbial illness (https://www.neurotalk.org/peripheral-neuropathy/222515-microbial-illness.html)

Hi Healthgirl

Here's a couple of links to sites with info on mold:

http://www.building.govt.nz/ws-mould-info-sheet

http://earthquakeservices.co.nz/docs/blackmold.pdf

They are both related to NZ as toxic mold became a big problem in houses damaged by the major earthquakes in the city of Christchurch 5 years ago. It is however the same types of mold that can be found in other countries.
From what you've said it doesn't sound like your house has a mold problem unless maybe it's hidden in wall cavities, attic or basement.

Quote:

Originally Posted by bluesfan (Post 1152816)

Hi Healthgirl

Sorry to hear your daughter is now also unwell. From your post I'm guessing you had a confirmed SFN diagnosis but no definite cause was found. As others who posted here have said it would tend to suggest an environmental cause.

I've done a quick review of some of the sites I bookmarked while searching for info on PN. Here's a couple that have some info on toxins that cause neuropathy. Some of the sites are pretty comprehensive and you may need to scroll down to find the sections on toxin neuropathy. Doing a further search on individual toxins may give an indication of whether you've had exposure to them or not.

http://www.clevelandclinicmeded.com/...hy/Default.htm

http://www.ninds.nih.gov/disorders/p...neuropathy.htm

One thing I did come across is that some insecticides can cause neuropathy - was your house fumigated prior to the symptoms appearing? Also have you had new carpet installed or other interior decorating? Sorry I haven't found anything specific on mold induced illness. Will keep looking as it is a topic that's been in the news media in my country (NZ).

All the best in your search for getting answers.

No new carpets or furniture. We have a new addition that we put on the house about 4 years ago, but we can't figure out if there could be anything linked to that.

Our house is at a lower point in the neighborhood where a lot of water gathers during rainy days. Our basement doesn't get wet but I wonder if enough moisture gathers to keep spores alive that can come in?? thinking thinking :confused:

I wonder.... I don't recall if you were tested for West Nile Virus?

I think you can look up where you live for stats on this. Our area was at one time having high infection rates, so high that our city started treating the storm drains with a chemical to kill mosquitos.
They dumped the stuff in and spray painted the grill of the drain each spring.

In the past I met a woman not far from me who became seriously disabled from West Nile. She could no longer work, and her memory was impaired from the encephalitis it caused. So while the CDC says that reaction is rare, it might not be so rare after all.
Most of our crows died from this. And today, we rarely see crows, at all. They used to be common here. So if you see an obvious shift in certain bird populations, you might look into West Nile.

But certainly-- your daughter being ill now with similar symptoms is very concerning. I hope you get to the bottom of this soon.

Do you find that you feel better when you are on vacation for a couple of weeks? If you feel better when you're out of your house for while, then it can be an indicator that something in the house is bothering you.

Quote:

Originally Posted by Marlene (Post 1152908)

That is a good question. I think about that all the time. Unfortunately we cannot take longer than 7 days when we go away. I was hoping when I started developing the terrible nerve pain last summer that a week long trip to the Adirondacks at a lake house would help, but unfortunately it did not help at all. I don't think a week would suffice though for something that has a cumulative effect or that is in me already and has my own cells attacking each other.

Any new cell towers or power line gone up recently?

Since you cannot get away for more than two weeks, think about renting a short term apartment for a month or two. Or if you have family close by, maybe your daughter could stay with them to see if her problems start to ease.

Any other neighbors having problems?

Is it possible to keep your windows open to help ventilate the house better. A fresh air exchange could help if it's environmental.

Quote:

Originally Posted by Marlene (Post 1152932)

The only thing relatively new (about 2-3 years I think) is a wireless meter on the side of our house. They take the reading from the street vs having to ask to look in the garage.
They are now putting them on all the houses once the analog ones go.

I have read most of your posts and I am sure that you mentioned this already as not being a possibility but your daughter's symptoms are a red flag to me since I have two sons with hereditary neuropathy. Is there any possibility that you have CMT? Does anyone in your family have PN?
Even if they developed symptoms when they were much older does not rule it out. It acts differently in every case and symptoms can show up in young children.
Was your EMG/NCS normal?