Thanks. But do you experience the same symptoms as I described?
I am really depressed, anxious :(((
So, you can live with SFN normal or do you have for example only years?
Do you have paresthesias all over your body?

+1
I am so sorry for your situation and lack of support from the doctors. I went all over the place before I could get someone to do a skin biopsy for me. And if it had been negative (you could still have SFN and have a negative skin biopsy), then it would still be: skin disturbance, pain syndrome, anxiety, etc.. Unfortunately, you have to act as calm as possible, but when the clinicians can't figure it out due to laziness, lack of knowledge, or genderism, their go to is ANXIETY.

I even had to mention that unless they were ready to commit me and I had a psychological break, no amount of anxiety could cause my symptoms.

Hope you can find an empathic doctor that will listen and realize that ANYONE with those symptoms would have anxiety.

Hope you get some relief very soon.:hug:

Welcome Patrick Winter. :Tip-Hat:

Yes that is true. Everything seems to be anxiety for some dr.
What are your symptoms? Are they always present, constant?
Can you pleeeease answer previous questions which u posted?

Hi. I too started with the symptoms you described in April and it is now July and zero improvement. My skin punch showed sfn but have been tested for everything under the sun and all they can say is its idiopathic (which means they don't know what causes it) which is a high percentage of the cases. As someone else suggested, test your vitamin, heavy metals, viruses that could cause it, blood glucose levels etc. It is a pretty horrendous feeling and I am in the same boat trying to get to the bottom of it. Hard to know if mine has progressed or not as there are some days that are better than others and certainly I have moments every day where I am so frightened by the loss of control. On my side, I found some copper deficiency which is rare so we are trying to supplement there. The theory my doctor(s) have is that I got hit with an acute virus that either damaged my nerves and this is the aftermath or that my immune system misfired and attacked my nerves in reaction to that. In that case, its possible to go the steroid route (ie prednisone) or IVIG. Considering IVIG still as a last resort. Hang in there and if you want to compare notes, feel free to send a pvt msg.

I have had it for a year (that i know of). And like you it seemed to come out of nowhere. That is quite common. I wouldnt say you will live "normal", you will live challenged. At least that is the stage i am at now. Struggling with what i can and can not eat, whether the medicine works, the supplements work, etc. For me, scripture helps. For some, that can make it worse or is of no interest to them. But, the key thing is to find places to turn for those moments of despair. Places like this forum!

As far as the "anxiety" I had much of it when i first started having the symptoms. i battled panic attacks much of the time going from this doctor to that doctor, worrying what it could be, googling it and seeing all the awful possibilities. I literally would sit in waiting rooms in hot sweats, rooms spinning. Stressing over what will become of my life. Now, looking back i realize that is where the Panic came from. Once I had a confirmed, sensible diagnosis the panic magically disappeared. Plus, SFN is something that will take the focus of that away. You wont be able to get as stressed and nervous when you have real pain that has a diagnosis. Once again, that is my situation.

Please DO NOT panic. Everyone has a cross to bear in life. And you become challenged. You will gain amazing perspective and appreciation for things that you took for granted. It isn't a death sentence, it can be painful. But, you haven't even tried medicine or alternatives yet. Just stay focused on treatment, not on the dread of what is to come. You can stress about nerve pain day and night and in the end something else may do you in. So please dont fear death. I never feared that once I went to doctors willing to do what wa needed. Get a diagnosis. A real good one and then make this site your second home.

I hope this in some way can help calm you. There is no reason to panic, at all.


BTW - Thanks for the welcome other users. This site has been one I have frequented for months but just finally got registered after some issues with verizon blocking me.

Thank you all. Today i have emg. I am scared how this will go. Is it painfull? Are there any risk?
Does anyone have constant buzzing ot vibrating?
I would like to have a family and i do not know if this is possible.
I started to get these symptons after tcd bubble study. First my toes in both legs thsn after some days legs thN after a week trunk and head and now arms so the whole body. I am scared because it goes fast. Some write only about tingling in legs for example.

Hm is it ok if i have mr of the head and neck without contrast?

Yes. That is how i had mine.

I believe the purpose of contrast is to show more detail in the
pictures. Our MS posters often get their brain MRIs with contrast.

But without contrast is safer for the patients, since the visualizing
agents can be toxic to some people.

If something is found iffy...on a contrast free test, then the option to redo with contrast may be offered.