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#41 | ||
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Junior Member
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I am.very depressed and anxious really. Do you have vibrating constantly? I have it constantly but sometimes.stronger feelings sometines it is better. And some parts of the body are.more vibrating
.. Like right leg now for some days. No i was not.talking about.shortness of breath but more.as someone.is sitting on your chest ... Anxiety related.i think. |
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#42 | |||
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Member
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Yes, I have vibrating constantly. When it is mild, I call it more of a tingling. When it's strong, it's definitely more of a vibration.
When I first wake up in the morning, I am "buzzing" in my whole body. We describe it here as feeling like you're plugged into an electrical socket. My legs and feet are definitely worse than the rest of my body. The best thing you can do for yourself right now is to try to reduce your anxiety. I know that's difficult because I remember how scared I was when it all first started, but it will definitely help if you can do it. Quote:
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"Thanks for this!" says: | canagirl (07-12-2015), Healthgirl (07-13-2015), madisongrrl (07-11-2015), Patrick Winter (07-11-2015) |
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#43 | ||
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Junior Member
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The problem is I am pregnant and I don't know if it is allright to be pregnant with small fibre neuropathy?
I've noticed that on my right leg, the skin is more irritated when for example i put my trousers on, like it would be more sensitive to touch, it doesen't hurt but strange feeling. Do you get this also? Like itching? |
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#44 | ||
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Member
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Quote:
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#45 | ||
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Member
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Quote:
In the beginning I would have things like this and random little numb patches that would last a day or so, invisible bruises, and little electric feelings everywhere. |
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#46 | ||
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Junior Member
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And do you think one has to take meds?
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#47 | ||
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Junior Member
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What about strange feeling on one toe for example this is normaL for sfn? Like you do not feel it right
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#48 | ||
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Member
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SFN should not be a problem with pregnancy. The extra water weight may aggravate some symptoms but this will be temporary. The sensations you describe are common to most of us and you should find that you get used to many of them over time as suggested. Also it is important to realize that since this is a disease where the nerve fibers themselves are deteriorating the signals do not correspond to the severity of the problem. Sharp and severe pain does not necessarily mean that you are getting worse or that there is something to worry about. There is no therapeutic benefit to most PN medications beyond symptom relief, and no problem with staying off medication while pregnant. It is unfortunate that you have to deal with this diagnosis while you are pregnant but try to concentrate on taking care of yourself and having a healthy pregnancy despite SFN. You have far more control over that than you do over the neuropathy symptoms. Has gestational diabetes been a concern for you? |
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#49 | ||
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Member
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Quote:
Things have been in a holding pattern for me for the past several months. Not getting any better, but not really getting much worse either. It seems that the nature of SFN is that it is very unpredictable. Some get better, some get continually worse, some stay about the same, some cycle up and down. But is seems very few are ever "cured". I'm still trying to come to terms with it. I try to keep up with dietary improvements, supplements, exercise, and stress reduction. I know its probably not going to cure me - but hopefully I can stabilize things and slow the progression down as much as possible. As for medications - that's totally up to you. I do take some Gabapentin, but that was to control twitching & cramping more than for pain. The meds won't cure you - just hopfully cover some things up. Obviously, you'll want to hold off on that until after your pregnance if at all possible. |
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"Thanks for this!" says: | madisongrrl (07-13-2015) |
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#50 | |||
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Member
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I do take medication because I have lots of burning sensations that are sometimes strong and hard to handle - especially on my face and the back of my head. Medication has allowed me to work full time for the past 1.5 years while dealing with this disease (during my acute phase I was only able to work part time and took vacation time to cover the rest). I did have to slow my career and life down tremendously and accept that this is my new normal for the time being. I'm okay with that.
If I had no burning and only had the buzzing, vibrating, tingling etc, I would choose to not take medication at all. It's a balance of managing your symptoms enough so you can still live your life. I think that looks different for each of us. |
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