I was fairly muscled and lean at about 122 lbs. Then all my symptoms came on very quickly and I dropped down to under 110 lbs. I barely moved or ate during this time. I laid in the recliner for a few months straight. After almost a year and a half I'm back at 122 lbs; however, my body composition is not the same because I'm not lifting weight anymore .

I had weight loss 30 pounds prior to my neuropathy due to esophageal tear and abdominal surgery.

It seems like the GI system can be connected to neuropathy.

It has been a year and I am still down 20 pounds.

Went from 150, to 120, to now 130.

I feel best at about 135-140, though that might be a little too much. I am padding since I was at 120, I felt so weak.

Still feel weak, but don't feel like I am dying.

HTH.

I'm 6'2" so I am closing in on "ideal weight". My neurologist feels the closest I get to that and maintain, the more likely I halt damage and perhaps even see some retreat?

That feels too bold to hope for, but on the table. I appear to be in a vocal minority on the boards from the diabetes lense. But it does appear flares for idiopathic often run a sugar/carb run.

I feel better with less on my stomach. My "meals" tend to be small. My eating heavy bow would be snack level at times before.

I eat often when I'm not hungry because I know I need to hit certain levels daily. I hope to shrink those occurances. Being in discomfort only adds to my lack of hunger. Feeding the beast in my case is just about the worst thing I could do.

I hope you seek some medical opinions on what to do Icelander, but stick aroubd here, eh? I learn all kinds of stuff that informs on my life in many ways.

Be well, keep your head up.

Jon

Kitt, the reason I am sick- is because of a neuropathic illness. I am diagnosed with idiopathic polyneuropathy and autonomic dysfunction.
It crept slowly for a year with mostly autonomic symptoms, weakness, and numb parts and then the nerve pain began. By "sick", I am talking about the acute phase when it went full blown all over my body and I was debilitated for 4 months. During this time I had such spasms in my muscles that I had difficulty swallowing. What I did swallow would come right out the other end. I was nauseated, dizzy, and in excruciating pain all the time.

Thank you for the information Healthgirl. It is appreciated.

After my third trip to a different Neuro and 60 lb loss of muscle mass from Quads and Gluts and the muscles that lifts your legs, The Dr. said I had Amyotrophy. I had started falling and went to a walker. My balance was bad and ED came on also. I was told that Amyotrophy has a critical phase and fast onset was standard. The good news is that after about six months the worst was past. I have put away the walker and leg strength is better but still weak. The ED is unchanged but I had rather walk than-you know. Balance is better but I still lean on the shower wall if my eyes are closed. I would search for Amyotrophy because the muscle wasting is a common symptom and the wasting is a scary process. I hope you can get encouragement and whatever you need to get yourself to the next day. I have remembered folks that have to make it hour by hour. Good Luck, Ken in Texas. P.S. Bi-lateral periferal motor neuropathy also.