Originally Posted by en bloc

Both (and only) people I know with PH also have Sjogren's and neuropathy.

I have Sjogren's, ganglionitis, PN, and severe autonomic neuropathy...along with another autoimmune condition called APS (antiphospholipid syndrome). It was considered at one time that I might have pulmonary hypertension and I went through some of the basic testing for it. Thankfully, it was determined that my shortness of breath during exertion is due to my severe autonomic dysfunction, not PH.

I don't know your history, so pardon me for asking questions you may have already answered on other posts. Do you have symptoms of Sjogren's...if so, what are they? Does your daughter have the same symptoms?

Have you been tested for Sjogren's (labs for SSA & SSB)? Or lip biopsy?

Did you neuropathy start first or the symptoms of Sjogren's? Have you had a skin biopsy to confirm SFN?

Frankly, I think you need to see BOTH a cardiologist and pulmonologist (working together). You need a full cardiac work-up as well as PFT (pulmonary function tests).

As for both of you coming down with this at the same time, are you referring to just the livedo or ALL the symptoms? If all, then a toxic element must be considered IMO. I know AI diseases have a genetic connection, but for both to be triggered at the same time is odd.