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Old 07-12-2015, 03:15 PM #1
Eskiemom Eskiemom is offline
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Default What does it mean if the supplement regimes don't work?

Though I have no official dx, I have implemented the supplement regimes for over one year. I have not had any improvement like some have.
I've tried everything with no affect.

Am I just one of the unlucky ones?
Or maybe it's not neuropathy?
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Old 07-12-2015, 03:57 PM #2
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Though I have no official dx, I have implemented the supplement regimes for over one year. I have not had any improvement like some have.
I've tried everything with no affect.

Am I just one of the unlucky ones?
Or maybe it's not neuropathy?
Have you tried stopping your supplements? That seems to be a good method to tell if they are doing anything or not. Sometimes it takes stopping them to realize that perhaps they were doing some good.
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Old 07-12-2015, 03:59 PM #3
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It all depends on what you are using.

If you use supplements for diabetes... and don't have that, well, don't expect much.

If you are not low in B12, don't expect a supplement to do much.

Many of the supplements are specific to certain actions.

Which ones are you using? and the doses?
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Old 07-12-2015, 04:06 PM #4
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Some can be so subtle but still "doing"something positive.

Some can be profound as I have had with grape seed ex and allergy/sinus issues. And edema also. And if it is preventing cancer, it's working.

Some may not do anything, but I like to give a supp a 3 month trial at least. Some may take longer to work in one's system.

I've gone off 2 supps in the last couple yrs and "knew it"...so went back on.
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Old 07-12-2015, 04:24 PM #5
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It all depends on what you are using.

If you use supplements for diabetes... and don't have that, well, don't expect much.

If you are not low in B12, don't expect a supplement to do much.

Many of the supplements are specific to certain actions.

Which ones are you using? and the doses?
Methyl B12 - 5,000 with folate at 1,000 (1 per day)
Cod Liver Oil - 1,000 2+x day
Co-Q10 - 200mg (1 per day)
ALA & ALC HCI - 600 and 1000 respectively (1 per day)

I've also taken Multi-B Neuropathy support with Benfotiamine 150mg, B2 10mg, B6 10mg, Folic Acid 100mcg, B12 500mcg, B5 50mg but have been taking it more like every second day. Also Vit E, Magnesium L-Threonate50mg plus magnesium lotion at night.
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Old 07-12-2015, 04:35 PM #6
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Quote:
Originally Posted by Eskiemom View Post
Though I have no official dx, I have implemented the supplement regimes for over one year. I have not had any improvement like some have.
I've tried everything with no affect.

Am I just one of the unlucky ones?
Or maybe it's not neuropathy?
I'm taking all supplements recommended on this site and after months and minths I've haven't noticed a thing! No improvements ....
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Old 07-12-2015, 04:44 PM #7
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Quote:
Originally Posted by Eskiemom View Post
Methyl B12 - 5,000 with folate at 1,000 (1 per day)
Cod Liver Oil - 1,000 2+x day
Co-Q10 - 200mg (1 per day)
ALA & ALC HCI - 600 and 1000 respectively (1 per day)

I've also taken Multi-B Neuropathy support with Benfotiamine 150mg, B2 10mg, B6 10mg, Folic Acid 100mcg, B12 500mcg, B5 50mg but have been taking it more like every second day. Also Vit E, Magnesium L-Threonate50mg plus magnesium lotion at night.
I think when you don't have a confirmed diagnosis you're gonna have a hard time targeting a specific problem.

Have you kept a journal over time of how the pain is? Video journals are good too.
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Old 07-12-2015, 04:49 PM #8
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What is your defined diagnosis though?
What I've heard most is Irritated and sensitive nerves. One neuro said "I think" you have pn. I do have Raynauds sporadically and its cousin erthymelagia.

But my feeling is at this point, I have to figure this out myself having visited 20 docs.
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Old 07-12-2015, 05:31 PM #9
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Originally Posted by Eskiemom View Post
What I've heard most is Irritated and sensitive nerves. One neuro said "I think" you have pn. I do have Raynauds sporadically and its cousin erthymelagia.

But my feeling is at this point, I have to figure this out myself having visited 20 docs.
Jay Cohen is a doctor who has EM. Three supplements that he uses successfully are Mg, ALA and PC.

http://medicationsense.com/articles/2012/emsup.php

http://www.jaycohenmd.com/erythromelalgia.html
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Old 07-12-2015, 05:32 PM #10
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Quote:
Originally Posted by Eskiemom View Post
Methyl B12 - 5,000 with folate at 1,000 (1 per day)
Cod Liver Oil - 1,000 2+x day
Co-Q10 - 200mg (1 per day)
ALA & ALC HCI - 600 and 1000 respectively (1 per day)

I've also taken Multi-B Neuropathy support with Benfotiamine 150mg, B2 10mg, B6 10mg, Folic Acid 100mcg, B12 500mcg, B5 50mg but have been taking it more like every second day. Also Vit E, Magnesium L-Threonate50mg plus magnesium lotion at night.
First off, drop that Cod liver oil to one a day. And start taking a good fishoil or krill oil to increase the anti-inflammatory effects of EPA and DHA. (3 reg fish oil or one extra strength krill) Cod liver oil has lots of Vit A in it and should be used cautiously. I don't think you need a B-50 while taking the Neuropathy support. That is too much B6.

600mg of ALA (the old racemic mixed form is not much). You could try the new improved stabilized R-lipoic acid called NaRALA ... just one of those a day is enough. The old form requires about 1800mg a day over time to work. Doctor's Best makes a good affordable Stabilized R-lipoic acid 100mg:
http://www.iherb.com/Doctor-s-Best-B...FUY8gQodXDkL_Q

What brand of CoQ-10 do you use? Is it Qunol or another new solubilized form? 200mg of the older types is not much and is not well absorbed. With Qunol only one a day is needed.

Do you take statin drugs for cholesterol? If so, you will continue with your nerve problems most likely.
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