Great news! This will be wonderful... When I tell most people I have neuropathy, they look at me like I have 2 heads. Hopefully, this will educate those who have never heard of this!

Cathie

This IS an org I am going to contribute to...
 

Because: IT puts it out up front!
I have been reluctant to give to the 'Neuropathy Foundation' just for this reason! You have to be a member to get more than 5-10 year old information. I do not mean to 'dis' the NF, but repeated requests to them to update or more clearly DEFINE their mission has responded to dear ears...or volunteers Up until recently, their info re IVIG was at least 7 years out of date...It has been recently remedied.

This particular advocacy organization is NOT a local one. It just happens to be 'housed' in CA. If you look at the board and advisory committees...it has great national depth and breadth.

HEY WE ARE THE PRIMARY ADVOCATES! We have to alert those locals...city councilpersons, state sen's and reps...some of them ultimately become National Sens/Reps and beyond...Educating at the local level, reminding them that WE ARE HERE, WE THINK and do other useful things - well..We educate, clue them into all the complex issues for the future! BUT we got our 'dib's in early! Then it's a matter of constantly reminding them' They see you with the FACE [PAIN but SMILING?] and the cane...that's in their mind from the GET GO!
WE ARE THE STARS! AND WE CAN AND WILL Get the publicity! Start Small, get large. - j