my take- You have not found enough relief from the tone of your posts to walk away from anything that is helping that has negligable side effects.

As far as relief, it is so individualized. Not just by strain or type (indica vs sativa) but the ever present individual chemistry. If I'd tread carefully on following any advise on dose/time frame due to this.

An example, you say?

20 years ago my twin brother came over. A friend and I were more practiced smokers. My twin thought he'd try to keep up. A fun panic attack later and a walk around the block he understood he didn't need an ambulance.

If you decide to continue to experiment on that path you will want to start a notebook or start keepung track in one you already have.

I hope to have access to medical when NYS goes live. I have good reason to believe it will be a useful tool for me. All of this is purely symptom management.

While I think you should continue to ask questions and educate yourself getting into how it will affect you is more unknown to everyone on the planet than you. From browsing Leafly.com (which makes sure to note none of anything is available to me, hah) Purple Haze has a nice high THC level. I'm not saying you should top out, but a three little bears approach may give you perspective.

Just don't pull a Maureen O'Dowd and eat a whole infused candy bar. If I were inclined to hold her as a bastion of intellect prior to that I'd have rethought that afterward.

Canagirl,

Why worry about possible, minor chances of risk of side effects WAY in the future when it is now that you need the relief. Who knows, in a year everything may have settled, you may have found a med combo, or you could have NO side effects from higher doses of Gabapentin.

As to the harm in titrating down, then going back on, you are running the risk of increasing your symptoms again and you have no Baseline to judge whether any other meds - like MMJ - are working (or their effectiveness) for all the time you are altering doses, then getting used to the new 'Normal', as you will never know what med is doing what. Remember, combinations are Key. I take 5 pain meds for Neurological, Arthritic, Referred and Musculoskeletal pain.

Dave.

Well I think I got my answer about what the gabapentin might be doing. I forgot to take by nighttime dose last night and things I thought were getting better ( a tinsi bit) came back. My limbs were extremely hot when I woke up ( not externally, but an internal warmness and burning). Also, when I wake up I have this habit of stretching and contacting my muscles really hard for a few seconds, what follow after this is that my muscles stay contacted then deflate like a balloon, then they twitch like crazy. I thought this had been getting better a bit but no. This actually has spread to my lower abdomen.

I wonder if my sfn is now in my lower abdomen too ( one tiny area where I haven't had most symptoms). I say this because for the last two weeks or so I have been getting what I assume to be gas pain. I've never had this in my life. I wonder if this is a symptom? Along with my wierd thing about muscle staying contracted and then twitching wildly , I think this is not the direction I was wanting my body to go in.

My hands and lower legs including feet have been burning much more lately. I kept telling myself that this was good, it's a sign they r getting better. Maybe due to increased blood flow from the mj, hot tub ( really a warm tub Cus temp at 99) and massage. But I don't think so...


Ugh, i have to figure out a way to cope that doesn't involve this wall of denial ( comprised of me telling myself that I am getting better because "x" feels different this week and of me saying that I just have to get through this year because I will start to heal next year, this won't be my fate.). This is the wrong way to "cope" ( as much as I am " coping"). This method still not working great

I keep reading previous posts from u guys and I understand all the advice, it all makes sense. But, I can't seem to cope still! I'm still a silly, weak mess. I can't help but be so frightened of the future... Will i be able to see next year, walk? Etc

I can't .... I just cry and cry all day. Why? I know many of u say u struggle to hold it together sometimes but u are holding it together sometimes. Why can't I hold it together and and accept this " new" life? How come I cant implement ur advice
My husband says I have to hold on to hope because he's found some stories online about people healing their sfn with diet. But, I csnt. Nobody here in nt has healed and u all talk about having good diets. Plus, I tried this for a few months and saw NO dofference.

None of us knows how our disease will progress from year to year or even day to day. All the more reason to enjoy whatever level of functionality we have on any given day.

I have three basic priorities each day:
1. Work to support my family (some days its very difficult).
2. Enjoy life as much as possible.
3. Take care of my body the best I can, so that I can keep doing #1 and #2 as long as possible.

Carpe Diem :)

Hi canagirl. Unfortunately I live in a state where mm is not legal for neuropathy. However, I do have friends in other states and have been gathering information for a trip to Colorado Springs sometime next year.

That being said, for Neuropathy, according to a doctor friend of mine, studies have shown mm to be the best thing for relief. Sativas seem to be the preferred type with preference for higher CBD then THC for symptoms. It is a personal choice I guess. There are pros and cons to smoking, vaping mm. It takes less time to act but lasts a shorter time then edibles. If you want the effects to last edibles seem to be the way to go. I have been recommended this book which is supposed to contain all the info one would need and is pretty current and comprehensive. "Cannabis Pharmacy: The Practical Guide to Medical Marijuana" by Michael Backes. I have not ordered yet but plan to before my trip. I hope this second hand information help.

For me it lasts about 3 hours.

Stretching should be done very gently and slowly. There are many nerves in the tendons, and if you stretch too hard you pull on them and irritate them.

Twitching and nerve symptoms are common upon awakening. Often this is due to low blood sugar, and goes away after one eats something. When you lie in bed for sleeping your heart rate goes down, your blood does not move around as much and tissues like muscles with a high need for glucose and oxygen may react until both are restored by movement and food.

I strongly suggest you stop aggressive stretching. Do a gentle stretch lying on your back, toes pointing up with heels on the bed. This will open up your back. Hold for a count of 10 and repeat once. Then sit up and do simple extensions of your arms and neck before standing up. This will prevent any orthostatic blood pressure symptoms if you have that.

I think after reading your posts for a while, that you should guard your joints and muscles until your PN trigger passes.
No acupuncture, no massages, no hot tubs, no strenuous stretches,...baby yourself and you might feel much better and get better faster.

Has anyone tried the Charlotte's Web strain? It's been gaining a lot of popularity in the mm world. I know you can order the oil extract from CWbotanicals but it's very expensive and not sure how effective it is.

I haven't tried that Specific strain but I've tried a similar strain that has no thc and high cbd. It didn't work well for me but I'll try it again Cus I only did it fur a day. I'm better on the low thc high cbd strain