NeuroTalk Support Groups - PN making us susceptible to pinched nerves

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- - PN making us susceptible to pinched nerves (https://www.neurotalk.org/peripheral-neuropathy/223550-pn-susceptible-pinched-nerves.html)

Quote:

Originally Posted by Lukesmom (Post 1158003)

When I was just beginning to also have symptoms in my hands and wrists at night, my neurologist told me that bilateral carpal tunnel syndrome is often underlaid by a predisposing polyneuropathy. And that almost all polyneuropathies predispose to the occurrence of superimposed upper extremity nerve entrapments. Hope this helps.

That is at least some attempt at an explanation. My first neurologist suspected CMT, sent me to Johns Hopkins for a second opinion where he confirmed it but also found nerve entrapments everywhere he looked, tested for HNPP which was negative. It was never explained, just something I accept as part of the package.
My podiatrist did say that a long standing diagnosis of bilateral carpal tunnel should have been investigated as it often means something else is going on, especially at my height and with my gait issues. He actually refused to see me again until I had been examined by a neurologist and so started all this about seven years ago.
I could make a very long list of serious health issues in myself and particularly my children that have been missed by doctors. I am not sure at this point why we ever bothered with "well-child" visits

Quote:

Originally Posted by Lukesmom (Post 1158003)

It does, thank you. I am actually at orthopedic surgeon's office right now. I havery not met him yet but my thoughts are that if this is going to happen often, I guess I should rule out surgery if he recommends it. I need to do something and soon because it is debilitating; however, some options have a long recovery and I would not want to endure that if I am going to have pinched nerves all over the place again in a few months.

Quote:

Originally Posted by Equine Dentist (Post 1158055)

Well my concern about surgery seems to have been for nothing. The orthopedic surgeon said that the pinched nerves in my elbows and wrists is considered minor and that this debilitating pain is most likely the neuropathy. How am I supposed to feel this bad forever??? I just can't stand this anymore. I havery seen many doctors, gotten a million tests. I thought at least repairing the pinched nerves would help me a little. From being told that things wouldn't get worse since I quit drinking a year and a half ago to now all this pain in my arms and wrists and hands.. I am sorry for the rant, I really am. I cannot stop crying and I can't accept this and I don't habe any more hope to feel better somehow. Is this supposed to be it? I just walk around with braces on and just be grateful each day for something?