The article I posted about the guy on our local news station who is starting the Neuropathy Awareness Foundation has some local doctors and politicians who are backing him.
I checked it out a little closer and one of the doctors is in my HMO!!!!!! He is about 100 miles away from our local office, BUT, I asked my primary care if he could refer me to him. I've got another Neurologist, but he specializes in head injuries, etc. When I saw that this guy was within driving distance to me, I wrote my doc and basically begged him to give me a referral.
I'll let you know how it goes! I will definitely mention our board to him and how everyone is so glad that they are doing this for us. But most important, I want some medication that won't make me feel like I live inside a cloud and can't find the words I need to communicate with others.
I want to see if he can more specifically identify what "type" of neuropathy I have and more specifically treat it.

I'll update you if I get help or not.

Way to go Seams:

Keep us posted.

Happy trails!!!!

mel

It's another one of the examples when we have to be proactive for ourselves. If your doctor is basically sitting on his duff and not helping you, research out the doctors who will help. You have made the first step to doing this. Good luck and keep us posted.

Billye

I'm sending you luck. I also think and I'm learning and said in my post how the encouragment of all you guys to use my voice has helped. I can so understand the brain fog and thought I was in one with the meds I was on but really didn't realize until today since I'm off how in outer space I was. One can't live like that so good luck.

Nice going! That was a brilliant move on your part. Here's hoping you will get the help you need.

Wishing you luck!

Cathie

Good luck Seams and keep us informed.

I'll be keeping you in my thoughts and sending lottsa positive vibes for a good outcome! I'll be so interested in hearing how this turns out and what this Doc has to say.