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-   -   For anyone who is following my situation.... (https://www.neurotalk.org/peripheral-neuropathy/223840-following-situation.html)

Lara 07-30-2015 10:37 PM

Quote:

Originally Posted by Healthgirl (Post 1158964)
I checked out everything I could find and went to the derm. He said it is levido, but can't figure out what is causing it in all of us. There is no itchiness or lesions. It is below the skin, so its not really like a regular rash.
It happens anywhere in the sun where ever.

You've typed levido, but do you mean Livedo?

Livedo Reticularis looked a little similar although there are several different types of Livedo and looking through the information on Livedo, they're usually caused by some serious underlying conditions and I would doubt that 3 of you in same family of varying ages would suddenly develop that plus some of the info about the benign form of Livedo actually says it resolves with heat... and that appears to be the opposite of what you're all experiencing.

There is another condition called _ Erythema ab igne _ that appears to be more heat related than Livedo.... but heck, I'm not a doctor so it's all just guess work. It is associated with chronic exposure to infrared radiation or low levels of heat.

It sounds as if it's related to your exposure to the sun. Maybe you're all just really sensitive to UV radiation from the sun??

Are any of you anaemic? The skin in your photos looks very translucent. I remember seeing others you posted on another thread and skin looked translucent and pale there too.

en bloc 07-30-2015 10:54 PM

Looks like Livedo Reticularis to me. Google images and see what you think.

Healthgirl 07-31-2015 07:05 AM

Quote:

Originally Posted by Lara (Post 1158973)
You've typed levido, but do you mean Livedo?

Livedo Reticularis looked a little similar although there are several different types of Livedo and looking through the information on Livedo, they're usually caused by some serious underlying conditions and I would doubt that 3 of you in same family of varying ages would suddenly develop that plus some of the info about the benign form of Livedo actually says it resolves with heat... and that appears to be the opposite of what you're all experiencing.

There is another condition called _ Erythema ab igne _ that appears to be more heat related than Livedo.... but heck, I'm not a doctor so it's all just guess work. It is associated with chronic exposure to infrared radiation or low levels of heat.

It sounds as if it's related to your exposure to the sun. Maybe you're all just really sensitive to UV radiation from the sun??

Are any of you anaemic? The skin in your photos looks very translucent. I remember seeing others you posted on another thread and skin looked translucent and pale there too.

It's funny that you mention translucent skin. I am sure that my skin has become translucent through out the course of this neuropathy. It is disturbing.
I thought the kids skin was looking a bit off as well.
I have low ferritin and copper deficiency which would account for the thinning skin. I'm trying to figure out what caused that deficiency. I am learning that some toxic exposures can complete with necessary minerals and it looks like I might be onto something.

Until this summer, none of us has ever had a photosensitive reaction. We don't burn. This is completely knew. My autonomic symptoms started just about 2 years ago, painful neuropathy started about 10 months ago and the rash started sometime in June. My kids started all this month.
If my 12 year old wasn't having neurological symptoms, I would think maybe the kids and I happened to have 2 separate issues going on, but she is having so many similar symptoms, so I can't help but think this is connected.

Healthgirl 07-31-2015 07:15 AM

Quote:

Originally Posted by Lara (Post 1158973)
You've typed levido, but do you mean Livedo?

There is another condition called _ Erythema ab igne _ that appears to be more heat related than Livedo.... but heck, I'm not a doctor so it's all just guess work. It is associated with chronic exposure to infrared radiation or low levels of heat.

I looked at that erythema rash. It does look like it, but ours goes away with in 20 minutes when we cool off. I will bring it up to the dermatologist. Thanks for that!

Marlene 07-31-2015 07:26 AM

Low copper raises a red flag when it comes to neurological issues. Iron, copper and zinc need to be in balance. How is your zinc?

Rare metabolic mutations can be involved in your body's ability to absorb and utilize copper. Unfortunately, restoring copper does not alway lead to improvement in symptoms but will stop further progression.

http://www.ajnr.org/content/27/10/2112.full

http://www.neurology.org/content/63/1/33

Hope you get this piece of the puzzle sorted out soon.

mrsD 07-31-2015 07:26 AM

Well, time to become a detective...

Look at all the things you share... bug bites (mosquito and tick),
vaccines (did you all get flu shots?), water (have it tested,for heavy metals), airborne (formaldehyde outgassing in the house, mold spores, industrial fumes, second hand smoke), foods (arsenic in rice, too much green stuff (see the recent post here on oxalate excess), that awful Himalyan salt,
the stuff you wash your clothes in (get sensitive soaps).

One thing that is a big cause of photosensitive dermatitis is the blue green algae in water. Right now Northern Ohio is having another microcystin attack from Lake Erie in their municipal water supply. This invisible to the naked eye, organism sits on skin that was exposed to the water, and reacts with UV to form dermatitis. Many people where we live in summers, have had this reaction including me. Many are fishermen who get this on their hands and arms.

http://www.tpchd.org/environment/sur...cyanobacteria/

Search the internet for an environmental doctor...they have a website, that might be helpful. Or call your local hospital to see if they know of a doctor who specializes in toxins.
http://www.aaemonline.org/referral.php

February 07-31-2015 08:01 AM

Just to add to the list, floride treatments, playing in sprinklers by someone's house who did fertilize, pool chemicals, school vaccinations, excavation sites, old houses with lead pipes, old lead paint anywhere....
I used lead testing kits that I bought from home depot to check lead content of plates we were eating on and also the kids toys.

February 07-31-2015 08:05 AM

Quote:

Originally Posted by mrsD (Post 1159019)
Well, time to become a detective...

Look at all the things you share... bug bites (mosquito and tick),
vaccines (did you all get flu shots?), water (have it tested,for heavy metals), airborne (formaldehyde outgassing in the house, mold spores, industrial fumes, second hand smoke), foods (arsenic in rice, too much green stuff (see the recent post here on oxalate excess), that awful Himalyan salt,
the stuff you wash your clothes in (get sensitive soaps).

One thing that is a big cause of photosensitive dermatitis is the blue green algae in water. Right now Northern Ohio is having another microcystin attack from Lake Erie in their municipal water supply. This invisible to the naked eye, organism sits on skin that was exposed to the water, and reacts with UV to form dermatitis. Many people where we live in summers, have had this reaction including me. Many are fishermen who get this on their hands and arms.

http://www.tpchd.org/environment/sur...cyanobacteria/

Search the internet for an environmental doctor...they have a website, that might be helpful. Or call your local hospital to see if they know of a doctor who specializes in toxins.
http://www.aaemonline.org/referral.php

Oh no...Blue green algae, what's wrong with Himalyan salt?

mrsD 07-31-2015 08:10 AM

I don't trust that salt.... I found a website listing all the minerals in it (from chemical analysis) and I don't think something like it coming from Pakistan is safe basically. That is just my opinion, though.

Kitt 07-31-2015 08:48 AM

Blue green algae killed a couple of dogs in my neck of the woods. And it also made a child very sick. Not something you want to get into.


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