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Old 08-05-2015, 09:30 PM #1
PhilfromOz PhilfromOz is offline
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Default Test back

Just back from my GP. Went back to him with new pain in my groin, (like a knife) had this for a week. Told him of the nerve pain in my top teeth and also the numbness on a small section of my lips. Funny these are all on the left side, however Pain, Tingling, Numbness and Burning are on both sides of my body, but below my knees.

All blood test are now back, and yes all clear like a lot of you guys.
Yes I think he has covered everything I have seen on here, from B12, diabetes, immune diseases, toxin checks, mercury, lead so on so on, Thyroid many many others. He has been great emailing me the lab reports.

He is trying to speed up my appointment with the neurologist to get a PET scan and has tried a referral to another Neurologist that might be able to get me in quicker than the 2 month appointment I currently have.

I think he is concerned at how my symptom's are worsening and indeed spreading.
As I am currently on 75mg Lyrica he has said to double that to 150mg per day and after a week or so go to 210mg if I'm still not getting any relief.

Fun and games here and I'm fine just want to get to the bottom of it. A little mad however they didn't find anything in the tests, I was so sure there would be an underlying illness that would be obvious.

Hoping my teaching will continue into the future but unsure with how quickly these other areas have popped up in the past week and also with how the increase of Lyrica will effect me.

Sorry to vent. I'm so so aware of how worse off a lot of you guys are than me, and I'm very grateful for all your help and advice.

Phil
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Old 08-05-2015, 11:34 PM #2
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Phil, it is good to read that the blood tests (which sound pretty thorough to me) did not show anything of concern.

I hope that your PET scan can be speeded up.
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Old 08-06-2015, 03:20 AM #3
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Quote:
Originally Posted by PhilfromOz View Post
Just back from my GP. Went back to him with new pain in my groin, (like a knife) had this for a week. Told him of the nerve pain in my top teeth and also the numbness on a small section of my lips. Funny these are all on the left side, however Pain, Tingling, Numbness and Burning are on both sides of my body, but below my knees.

All blood test are now back, and yes all clear like a lot of you guys.
Yes I think he has covered everything I have seen on here, from B12, diabetes, immune diseases, toxin checks, mercury, lead so on so on, Thyroid many many others. He has been great emailing me the lab reports.

He is trying to speed up my appointment with the neurologist to get a PET scan and has tried a referral to another Neurologist that might be able to get me in quicker than the 2 month appointment I currently have.

I think he is concerned at how my symptom's are worsening and indeed spreading.
As I am currently on 75mg Lyrica he has said to double that to 150mg per day and after a week or so go to 210mg if I'm still not getting any relief.

Fun and games here and I'm fine just want to get to the bottom of it. A little mad however they didn't find anything in the tests, I was so sure there would be an underlying illness that would be obvious.

Hoping my teaching will continue into the future but unsure with how quickly these other areas have popped up in the past week and also with how the increase of Lyrica will effect me.

Sorry to vent. I'm so so aware of how worse off a lot of you guys are than me, and I'm very grateful for all your help and advice.

Phil
Autoimmune would be a good place to test for, and some spinal issue if you havnt tested for these yet.
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Old 08-06-2015, 03:27 AM #4
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Thanks, apparently autoimmune tests were clear, not sure about spinal. Is that spinal fluid or some other tests for that ?
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Old 08-06-2015, 03:59 AM #5
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So what were your B12 results exactly in numbers?
Labs still report lows as normal.

In US 400pg/ml is the new low .. Yours may be in
Nmol and need to be converted to compare.
People fall thru the cracks commonly with this test.
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Old 08-06-2015, 04:32 AM #6
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VITAMIN B12 FOLATE - 30/07/15

CUMULATIVE VITAMIN B12 AND FOLATE ASSAYS
Date 30/07/15
Time 00:00
Lab No 57139953

B12 Total 470 pmol/L (162-811)

Comment:
57139953
Serum Vitamin BFG0012 Assay:
Essentially normal BFG0012 levels, although liver disease if
present may falsely elevate the level.
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Old 08-06-2015, 05:05 PM #7
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Originally Posted by mrsD View Post
So what were your B12 results exactly in numbers?
Labs still report lows as normal.

In US 400pg/ml is the new low .. Yours may be in
Nmol and need to be converted to compare.
People fall thru the cracks commonly with this test.
Hi Do you have a link for that number please? I can't find anything about it, and my labs just came back "normal" at 316. Thanks.
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Old 08-06-2015, 06:05 PM #8
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Hi Do you have a link for that number please? I can't find anything about it, and my labs just came back "normal" at 316. Thanks.
http://www.aafp.org/afp/2003/0301/p979.html

The Japanese have a cutoff low for B12 over 500 BTW... as they had an epidemic of low B12 that maimed and killed many thousands of people in the late 70's. (it was from a common drug called Vioform, which has been taken off the market here long ago. It is now called clioquinol-- an antifungal and used for traveler's diarrhea in the past. It was very popular in Japan.)

https://chriskresser.com/b12-deficie...-consequences/
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Old 08-07-2015, 07:27 AM #9
PhilfromOz PhilfromOz is offline
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Not sure what autoimmune was tested . I have all the lab reports but not sure what I'm looking at. Only going on what the GP says....all clear
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Old 08-07-2015, 06:27 PM #10
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Phil, if you want to you could post the details of the lab reports about autoimmunity here (or by PM if you would prefer).

I (day job stuff) know a fair bit of immunology so might be able to comment.
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