I am positive I have this. Does anybody else? Does it go away? It's horrible pressure inside my head as well stabbing non stop pulsating pain and my face vibrates and trembles. Any relief? I've been alternating heat and Ibe on my neck and head and it doesn't seem to be helping at al

I have this, but it's from SFN. I have left sided eye, face and throat pain.

When I have a bad flair (which is multiple times each week), I usually try to do some deep breathing to try and relax. I do the deep breathing in a 1:2 ratio. 1 part on the inhale to 2 parts on the exhale.

If I'm at work, I will take a 10 minute walk to try and move to get my mind off of it.

NO heat.... only ice! Heat stimulates nerves. Use ice sparingly....no longer than 20minutes. 2 or 3 times a day max.

The only exception is RSD.

Canagirl,

It is likely that this is caused by your SFN and stress. I would not be quick to look for other possible disorders when you already have a cause.

True Isolated ON is quite rare and, as a sufferer of Classic TN, I can tell you that your symptoms do not match up. TN is not non-stop, it is the second most painful condition known, like being stabbed with electrified needles over and over again for a period of the Attack. Triggers are things like touch, cold - even a cool breeze can be enough - talking…

Just keep doing the right things and concentrating on reducing your stress and finding the combination of meds at the right doses that work.

Dave.