NeuroTalk Support Groups - Update on my non-length dependent SFN

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NeuroTalk Support Groups (https://www.neurotalk.org/)

- Peripheral Neuropathy (https://www.neurotalk.org/peripheral-neuropathy/)

- - Update on my non-length dependent SFN (https://www.neurotalk.org/peripheral-neuropathy/224477-update-length-dependent-sfn.html)

LouLou1978

08-12-2015 04:27 PM

Quote:

Originally Posted by Healthgirl (Post 1162172)

I agree with this. Ibuprofen, naproxen does nothing for my neuropathy or muscle spasm pain. Tylenol even does a little something (don't understand that -maybe Mrs. D knows), but NSAIDS do nothing. Mine is non length dependent and all over my body and head. It is thought to be autoimmune/inflammatory type thing, but they are not sure.

Hi Healthgirl,

How are you doing, have you tried the steroid infusion to see if it is inflammatory based neuropathy?

Healthgirl

08-12-2015 05:40 PM

Quote:

Originally Posted by LouLou1978 (Post 1162174)

Hi Healthgirl,

How are you doing, have you tried the steroid infusion to see if it is inflammatory based neuropathy?

No, I was only offered the (oral) medrol dose pack which is a high start taper down method of steroids. On the third day I was up for a straight 72 hrs shaky with a burning stomach so they told me to go off.
I asked my neuro if we could try it out again since that was 9 months ago and he still wants to wait.

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