advertisement
Reply
 
Thread Tools Display Modes
Old 09-04-2015, 09:48 AM #21
February February is offline
Junior Member
 
Join Date: Jul 2014
Posts: 93
8 yr Member
February February is offline
Junior Member
 
Join Date: Jul 2014
Posts: 93
8 yr Member
Default

It could be as simple as a magnesium, calcium or potassium insufficiency or deficiency. I eat a banana when it happens and many times the twitches will stop. I stay on top of the magnesium and calcium, because I've tested low, and most muscle spasms and twitches have gone away.
February is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
mrsD (09-04-2015)

advertisement
Old 09-08-2015, 04:29 PM #22
pinkynose's Avatar
pinkynose pinkynose is offline
Member
 
Join Date: Jul 2015
Posts: 506
8 yr Member
pinkynose pinkynose is offline
Member
pinkynose's Avatar
 
Join Date: Jul 2015
Posts: 506
8 yr Member
Default What little I found out at appointment

I just came back from my appointment and I didn't get much information out of the neurologist, surprise, surprise... He told me I had benign fasciculations which were causing the twitches, not PN. I pressed him so I could bring back some info for you guys and IF I understood him he said twitches were a sensory symptom and that thin fibers caused the burning and thick fibers caused all the other sensory symptoms. Not sure I follow that. Maybe MrsD can make sense of it.
pinkynose is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
madisongrrl (09-19-2015), mrsD (09-08-2015)
Old 09-08-2015, 05:49 PM #23
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Tongue

I hate to say this, but some doctors do make stuff up.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
pinkynose (09-08-2015)
Old 09-08-2015, 06:49 PM #24
uglogirl's Avatar
uglogirl uglogirl is offline
Member
 
Join Date: Jan 2014
Location: Ohio
Posts: 195
10 yr Member
uglogirl uglogirl is offline
Member
uglogirl's Avatar
 
Join Date: Jan 2014
Location: Ohio
Posts: 195
10 yr Member
Red face Twitching

Quote:
Originally Posted by Healthgirl View Post
From everything I have read, I find all symptoms for SFN to be sensory and autonomic. For almost a year, I have twitching in random parts of my body coming and going all day. Sometimes they are strong and slow and sometimes very fluttery and fast. I have terrible muscle spasms in my neck and shoulders which seem to throw my whole cervical and thoracic spine surrounding muscles into a crisis. I have had the complete spine and brain MRI, but my muscle symptoms are not consistent with SFN. My doctor has be diagnosed on paperwork with progressive polyneuropathy and he is very mild with treatment (which I like and don't like). Icaught a bunch of the crazy twitching on my phone video and showed him and he just said "Hmmm". I think he knows more than he tells me, but doesn't want me to lose hope.
Hi Healthgirl,
I have twitches also that come and go and I was diagnosed with sensori polyneuropathy. The twitches are not every day seems to happen when my sugar is high or not feeling well. Today I am paying with the feeling of a pair of boots and burning like a bad sun burn had the twitching when I was trying to sleep, had to much Labor Day Celebration.:
uglogirl is offline   Reply With QuoteReply With Quote
Old 09-18-2015, 06:05 PM #25
Albertakewl Albertakewl is offline
Junior Member
 
Join Date: Dec 2014
Posts: 89
8 yr Member
Albertakewl Albertakewl is offline
Junior Member
 
Join Date: Dec 2014
Posts: 89
8 yr Member
Default

I did have tingling,twitches,jerking. And now swollen ankles and feet and a feeling of I am wearing something on my lower legs and lower arms. Feels like it's all up my left side now, if I run the top of my left foot . You can feel the tingling . I was on effexor for the problems and my so called aniexty that I didn't have , I have seen an internist, nueroligist and a couple useless drs. I've had 2 Mri , and nothing. And a nerve conduction test. ThY refuse to do N emg or other test because they say it's no nueropathy. He said my Brain was irritates, I wonder if it's sfn.
Albertakewl is offline   Reply With QuoteReply With Quote
Old 09-29-2015, 09:32 AM #26
onebeed onebeed is offline
Member
 
Join Date: Aug 2015
Location: Kansas City area
Posts: 110
8 yr Member
onebeed onebeed is offline
Member
 
Join Date: Aug 2015
Location: Kansas City area
Posts: 110
8 yr Member
Default Muscle twitching

I also have developed muscle twitching in the last month or so in my legs. The neuropathy seems like it is getting a lot worse. It used to be just my feet, now I have stabbing in my ankles and the pain is halfway up my calves. My muscles have started twitching and my calves feel like they are cramping. I take magnesium citrate. The pain has gotten so bad that I can't sleep at night. Also started new weird sensations like water dripping up my legs.
onebeed is offline   Reply With QuoteReply With Quote
Old 09-29-2015, 12:04 PM #27
pinkynose's Avatar
pinkynose pinkynose is offline
Member
 
Join Date: Jul 2015
Posts: 506
8 yr Member
pinkynose pinkynose is offline
Member
pinkynose's Avatar
 
Join Date: Jul 2015
Posts: 506
8 yr Member
Default

Quote:
Originally Posted by onebeed View Post
I also have developed muscle twitching in the last month or so in my legs. The neuropathy seems like it is getting a lot worse. It used to be just my feet, now I have stabbing in my ankles and the pain is halfway up my calves. My muscles have started twitching and my calves feel like they are cramping. I take magnesium citrate. The pain has gotten so bad that I can't sleep at night. Also started new weird sensations like water dripping up my legs.
My neuropathy started with twitching which my neurologists insist are benign fasciculations. Truthfully I don't care what they call it as long as it stops because they made it impossible to sleep. I had the burning and all the other sensations you are describing but at the beginning they were not as much an issue as they later became. I am on Gabapentin but I am looking to get off it. Some people are helped by it. I am looking for a doctor to prescribe a topical with Gabapentin and other ingredients that I can use as needed instead.

Some things to try:
Slow Mag (1 in the morning and 1 at night with a meal)
Morton's Epsom Lotion
Aspercreme with Lidocaine (some people prefer Menthol instead)

Check some of the threads on topical creams and supplements. There is a wealth of information. I hope this helps.
pinkynose is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
bluesfan (09-29-2015)
Old 09-29-2015, 06:09 PM #28
Irina Irina is offline
New Member
 
Join Date: Sep 2015
Posts: 3
8 yr Member
Irina Irina is offline
New Member
 
Join Date: Sep 2015
Posts: 3
8 yr Member
Default

pinkynose, you mentioned about stopping your sleep med and noticing change in twitching. Can you tell me how are you doing now? I also take sleeping pill (ambien) and wonder it some of my symptoms, including twitching, from it. Thanks.
Irina is offline   Reply With QuoteReply With Quote
Old 09-29-2015, 08:05 PM #29
pinkynose's Avatar
pinkynose pinkynose is offline
Member
 
Join Date: Jul 2015
Posts: 506
8 yr Member
pinkynose pinkynose is offline
Member
pinkynose's Avatar
 
Join Date: Jul 2015
Posts: 506
8 yr Member
Default

Quote:
Originally Posted by Irina View Post
pinkynose, you mentioned about stopping your sleep med and noticing change in twitching. Can you tell me how are you doing now? I also take sleeping pill (ambien) and wonder it some of my symptoms, including twitching, from it. Thanks.
Hi Irina
I'm doing pretty well being off Ambien. When I took the drug I would sleep 6 hours but then I'd be awake. Most nights now I will wake up more frequently but fall back asleep. Overall I am getting more hours of sleep most nights. I do not have the same feeling of tiredness the next day that I often had with the drug.

All my symptoms including twitching began lessening the 2nd day after I was off the drug. Burning was the one sensation that improved the most and all have been less until a recent flare. During that flare the days weren't so bad but the nights were intolerable especially psychologically because I thought I was on the mend.

Because my flare was upsetting me so badly I gave in and took an Ambien one night in order to escape. The next day my daytime sensations were awful. I hope to remember that so I don't do it again but I know I'm human and sometimes I just need out. At least i know what to expect now when I do.

Everyone is different and I don't know if quitting Ambien will improve your symptoms. I was on the drug off and on for 20+ years and it's not meant for long term use. I totally get what it's like not being able to sleep. Good luck!
pinkynose is offline   Reply With QuoteReply With Quote
Old 10-02-2015, 06:53 PM #30
KateKline KateKline is offline
Junior Member
 
Join Date: Aug 2015
Location: Denver
Posts: 48
8 yr Member
KateKline KateKline is offline
Junior Member
 
Join Date: Aug 2015
Location: Denver
Posts: 48
8 yr Member
Default

I have jerking and shaking more so on my weak left arm and leg. I also have buzzing on and off in both legs. I have not any pain.....just tons of discomfort from intense pressure and shaking. I cannot ever get comfortable!!!!! I have SFN. Let us know!
KateKline is offline   Reply With QuoteReply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Newly Diagnosed - Small Fiber/Large Fiber Neuropathy! Please Help! JoshuaY46012 Peripheral Neuropathy 17 11-12-2019 03:55 AM
muscle twitching/spasms RAllen82 Traumatic Brain Injury and Post Concussion Syndrome 8 08-22-2014 09:02 PM
Muscle spasms/nerve twitching italian1982f Reflex Sympathetic Dystrophy (RSD and CRPS) 4 04-14-2014 09:46 PM
Small fiber neuropathy and muscle wasting debbiehub Peripheral Neuropathy 5 06-16-2013 09:49 AM
Muscle spasms/ twitching InHisHands Reflex Sympathetic Dystrophy (RSD and CRPS) 33 12-15-2009 05:05 PM


All times are GMT -5. The time now is 10:14 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.