Twitching
 

Hi,

I know it has been a while since anyone has written in this forum but i just wanted to know if any of you managed to get any further with finding out the cause of your small fibre neuropathy. It seams that most people do not have twitching with SFN but a subset (like us) do. I wander if this helps to point to the cause, as whatever it is, its also affecting the muscle ?

Also i have noticed that my twitching is usually exertional, like after streching or walking.

Hope you are all in a better place now. Please let me know if you any one has any answers as to the cause of their SFN ..... Im just starting this journey and am determined to find 'my' cause and not be fobbed off as idiopathic by the Doctors.

Thank you

I have non-stop fasciculations in both calf muscles, and have done since a month or so after my first tingling symptoms a few years ago. The calf fasciculations are permanent with me. I have also had eyelid twitches, non stop for three months, until my neuro gave me botox injections. I still have occasional bouts of eyelid twitching, but, fingers cross, tends to subside.

My understanding of twitching/fasciculations is that it could be a sign of motor neuron issues but can also be an extension of sensory problems sending out the wrong signals.

I take heart in the fact that people with benign fasciculation syndrome (BFS) have precisely the same symptoms without concern or alarm--this makes me think that it doesn't take a lot of nerve damage to cause twitching.

Thank you very much for your reply. It seams that BFS and SFN overlap considerably. I just wander if the twitching element is indicative of cause, as not all people with SFN have it. Would be nice to hear from someone who managed to find their cause and also presented with twitching.

I have large fiber sensory motor neuropathy and have had fasciculations in my calves and biceps for many years now. The cause of my peripheral neuropathy is toxic exposures.

Did you find anything that helped against the fasciculations?

magnesium 400 mg a day. right now im taking source naturals ultra-mag. its much less than it was so far

I’m glad I ran across this post. I have this myoclonic jerking. It was really bad a few years ago but thankfully subsided. The heavy flare up lasted about two years. It was worse as I was falling asleep. I too had my husband film it as I fell into a deep sleep. Neurologist said it was psychogenic. I literally wanted to choke the jerk. It as super worse when tired or stressed.

I hope yours too will subside.