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Old 08-24-2015, 03:49 AM #8
Neuroproblem Neuroproblem is offline
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Join Date: Feb 2015
Posts: 355
8 yr Member
Neuroproblem Neuroproblem is offline
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Join Date: Feb 2015
Posts: 355
8 yr Member
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Quote:
Originally Posted by indigo View Post
Thanks to all of you for your support. Can't write much. Need voice activation but in a very long queue. To respond to some of you- there's no pain specialist in my region and no effective rehab ward. I see my GP once a month. Her preference. I've been to ED 6 times in 2.5 yrs. Admitted twice. Once this year for 12 days. It helped, gave me respite. Other admission 2013, a nightmare. First 2 wks fine then transferred to rehab. There was none. I planned my own rehab and tried to do that. Treated badly, they were aware I had a psych history and stigmatized me. I was highly traumatised by the time i left.

I'm on gabapentin, norflex, nortriptyline and coming off a low dose of methadone for pain. Pregabalin isn't funded and lidocaine patches are illegal. I've had tramadol morphine prednisone. None were helpful. I take magnesium and melatonin. There's no where for me to go and no respite care available for me. Don't fit criteria. ED itself has a long history of treating people who experience mental illness badly. Something staff at mental health services acknowledge.. Sorry can't complete this. Too painful.
Have you delve into whats causeing your neurological symptoms?
i LOOKED up the closest definition, it sounds it could be related to autoimmune diseases, do you have anything that is close?
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