For CIPNers,

Here is an easy to under pictorial of how different types of chemo attacks different parts of the nerve pathway ( as much as they know), that may be useful to some:

http://www.integrativeoncology-essen...mo-neuropathy/

For those of us on taxanes, or combination therapies, it impacts about every aspect of the pathway.

I had a few different top oncologists, and I found it discouraging when they all starting asking me questions like "how is Diabetic PN different from Chemo PN?" and to send them studies and info I come across to help them learn.

Natalie

This would be really helpful on the Subforum above, in the
Medications that cause PN thread.

Do you mind if I copy it to there?

or you could and that would preserve your "by-line"..

http://neurotalk.psychcentral.com/thread122889.html

A very good site. I had seen it before. Lots of information on there.

Thank you.

Very good info on relaxation and it's benefits.

I've used a tens machine very successfully in self treating. I use it on pulse to pump blood into my lower legs to relieve muscle cramping and pain. This it has done pretty well. I went from terrible foot and calf cramping at night to barely any.

It works well for pain and I get a window after using it of up to several hours of pain relief to specific areas.

Hi Natalie,

Great site...thanks!
I don't have chemo induced neuropathy but have breast cancer and just finished radiation treatments....I have pretty severe neuropathy from a previous Lyme Disease infection and all my treatments have made it worse. I posted on the chronic pain forum about Golden Milk and I really think it is helping me. Turmeric is the main antiinflammatory agent in the milk and it is mentioned in the link.

Thanks again for sharing this very informative site.
I wish you well.
D.

Sure ... whatever helps.

Not sure if you want to move the chart or the whole thread there somehow .... go ahead and do it however you want to do it and think is best.

I started some past threads that concentrate on specific topics / tips that I thought should eventually be moved to the "PN tips" folder above.

It seems more people chat and post in the main forum area, and newbies go to the pn tips folder to get their grounding on the basics .... so I wanted to kick ups some conversation / comments on certain threads in the general area and then perhaps later ask the threads that seem good for a specific tip/topic to be moved to the pn tips area.

Do you know how to move your own thread from one the main area to the "PN tips" area?

Am I in line with the philosophy of these areas?

I am currently in a big research phase, so I'll post stuff that I come across that I haven't found when searching on the forum but believe would be useful to others.

Thanks,

Natalie

Just a quick side note .... I am not an expert but I thought many find dairy inflammatory.

The turmeric is great but I wonder if you might do even better cutting out the milk.

If you want another idea, try Dr. Weil's turmeric tea. If you really want a kick, combine it with ginger, another anti-inflammatory.

http://www.drweil.com/drw/u/ART02833/turmeric-tea

Natalie

It is best if I move things. You can copy your posts, copy/paste from the text box that opens when you hit "quote"..

This preserves the url of any links you have in the post.

If you just copy from the post as it shows on the thread, the links will die and be inactive. This happens commonly to all of us at one time or another.
It is best to always test any links in a copied post...because if you do it the wrong way, they will be inactive.

So I will move this information to the Subforum this time.
Thanks.
It is all done now.

What's amazing about this particular link/page above, is it the first time I have seen someone really pull together a very knowledgeable "do and do not do" list of supplements that one can take specifically for Chemo pn, that stacks up with my own research and I respect (and believe me, I've looked).

I've read lots of studies and seen all kinds of different sites that has different bits and pieces, but this is one of the best shortlists that really sums up well where the top supplement options seem to be right now specific to CIPN.

I will have to look at their recommendations and dosages in more detail, but for the most part, it appears at first glance that they have pulled together a pretty solid list of the current top picks.

Frustrating that we have to run around and dig deep to figure these things out on a time-dependent ailment. I personally found the different oncologists, neurologists, primary care doctors next-to-useless. I would have loved to have walked into a health care professional office and heard "well, we can't promise anything but here is a complete program of what you can try and get started on .... "

Perhaps "integrative oncologists" are leading the way. Even though 40% on chemo get cipn, my oncologist bluntly told me "frankly, there hasn't been much interest in this topic in the medical profession".

This makes me so angry to read.... I'll have to cool off and reply later. How can doctors be so blind, I have to wonder?