[madisongrrl]

....and I sent a message to my Primary asking for a referral to pain management. This was Neurology's (UW teaching hospital) recommendation to me last winter. I feel a little defeated by this, but it's time to get some quality back into my life. As nice as my primary is, I want to smack her when she asks, "Do you have numbness and tingling?". Um, yeah...and them some, sister. She means well, I think.

I've been a constant flair cycle with head to toe burning, sandpaper feelings on my face, arms, back and butt. I have facial pain that is getting to be unbearable. The last few days I've been having breathing problems again, much like I did when this awful disease started. My breathing sounds like an 80 year old woman who has COPD.

Small fiber neuropathy sucks!!!! Sorry for the vent, but I'm feeling oh so terrible. Any advice or personal stories about dealing with pain management doctors is much appreciated.