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09-01-2015, 06:40 AM | #1 | |||
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I really hope it's ok to post a link here. This is THE major player in dealing successfully with pain issues IMO. I've not seen better and these issues have been a game changer for me in my struggles with fear and pain. I hope someone else can make use of this. As horrific as this disease feels, it's been a wake up call for me and shown me how I might have gotten to this place in my life and even more importantly shows me how to change the game should I decide the game I've been playing is not the right one for my happiness. I would have to say then that in some very important ways this disease has been my best teacher.
http://topdocumentaryfilms.com/proje...or-perception/ Last edited by icelander; 09-01-2015 at 07:38 AM. |
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"Thanks for this!" says: | bluesfan (09-07-2015), DejaVu (09-03-2015), Diandra (09-02-2015), northerngal (09-01-2015), Ragtop262 (09-01-2015), tigerlily7777 (09-06-2015), vintagewine (09-06-2015), zkrp01 (09-01-2015) |
09-01-2015, 11:22 AM | #2 | ||
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At the same time when pain is real you will not talk yourself out of it and you will seek out mercy. Big pharma is not completely awful, there ARE good life saving medicines out there. For someone in excruciating pain there is a place for painkillers. Anesthesia is a big pharma invention and is essential. Same with thyroid and some hormone therapies. Thing is, pharmaceuticals should be a last resort, not a quick fix.
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Diagnosis: Idiopathic Small Fiber Neuropathy (Statin Induced) • R-Lipoic Acid: 100mg - 300mg Daily • Acetyl-L Carnitine: 1500mg Daily • Vitamin B12: 1000 mcg Daily • Magnesium 500mg Daily • Grape Seed Extract 200mg Daily • Benfotiamine 300mg daily |
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09-01-2015, 12:06 PM | #3 | |||
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What the documentary is advocating IMO is self knowledge and doing your own research and experimentation rather than getting a doc to throw you a pill and considering that due diligence. But there is a lot more to that video than this IMO. And since I've been doing my relaxation work and diet change I can't help but believe it's really seriously helping me. It's likely helped reduce my pain by half at least. I'm going to cut back slowly on my Gabapentin and see (see the video) if that so called "side effect" of inhibiting urination might be the cause of my bladder issues. I'll let you all know one way or the other. But even if it wasn't helping much with pain my psychological health has improved dramatically also and was happening before the real pain reduction kicked in. I'm handling my life better in all areas. Am I right, will it work for others? I'm not sure ultimately, things could come roaring back any minute. But they haven't and not for a while so I think I'll keep on keeping on until my body shows me I'm not on the right track. |
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09-01-2015, 01:54 PM | #4 | ||
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Last edited by zkrp01; 09-02-2015 at 08:38 AM. |
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09-01-2015, 09:02 PM | #5 | ||
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Thanks for this Icelander. I have always believed that stress and anxiety in my life has been a large contributing factor to developing PN. (If not the root cause.)
Don't have time tonight, but I'm definitely looking forward to coming back and viewing that documentary as soon as I can. I'm also thinking about getting that book "full Catastrophe Living" that you posted about earlier. I'm glad that you seem to be finding some measure of peace. I hope things keep moving in the right direction for you. |
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"Thanks for this!" says: | DejaVu (09-03-2015) |
09-01-2015, 09:08 PM | #6 | |||
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My symptoms came on after the most stressful year of my life. I worked with an awful person who pretty much terrorized everyone that they worked with (and this still goes on). And I had to work with this person VERY closely. Sigh...
This wasn't the cause of my SFN, but it was sure fuel for the fire....especially if my neuropathy is immune-mediated, you really have to wonder. The one positive thing that I've learned from this disease and this whole medical experience is that there is nothing medically that will ever scare me.
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"Thanks for this!" says: | DejaVu (09-03-2015), northerngal (09-06-2015) |
09-05-2015, 06:03 PM | #7 | |||
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I just watched the video and it was quite educational. I took notes so I could refer to them when I need a refresher. The explanation of protection response (stress effects) on the body made more sense then anything I've heard before on this popular subject. My symptoms also came on after an obscenely stressful year and I know because it was continuous and there was no recovery phase my wires short circuited. I am thinking about possibilities |
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09-06-2015, 08:46 AM | #8 | |||
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09-12-2015, 05:28 PM | #9 | |||
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A new phase of my life begins on Monday as I start a full-time job for the first time in 12 years. I'd worked sporadically during some of those years, but not full-time and not in stressful positions.
I've accepted a job with a young high tech company going through a tremendous growth spurt. The stress is palpable, but been there done that. Worked for a high tech start-up for 14 years. The good news? Wear whatever you please. Sit on whatever you want. One woman's chair is one of those big inflatable balls. I know I'll least be comfortable sitting at a desk all day again. So suddenly I'll be dealing with work stress. On the other side of the coin, financial stress will go away. Health insurance stress will go away. I'm putting on my big girl pants and being a responsible adult again. I never learned to deal with work stress well. Couldn't turn it off at night and couldn't not bring it home with him. I'm hoping age and perspective will help this go-round. |
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"Thanks for this!" says: | madisongrrl (09-13-2015), pinkynose (09-13-2015) |
09-13-2015, 04:10 PM | #10 | ||
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Hi janieg
All the best for your new job tomorrow. Taking care of the financial & health insurance stress will be a huge weight off. Re the work stress - just remind yourself that you've dealt with worse throughout your illness and work stress is just gonna have to take the back seat for once. If I might make an indulgent suggestion - print out a copy of that photo I posted on my 'great day' posting - you know the beach one - tape it to your work station and when you find things getting to you at work just switch off for a moment and imagine yourself sitting in the sun in a beautiful location away from all the hassles. Take care - bluesfan |
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"Thanks for this!" says: | janieg (09-14-2015) |
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