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-   -   Just got back from alledged specialist!! (https://www.neurotalk.org/peripheral-neuropathy/225745-alledged-specialist.html)

onebeed 09-10-2015 10:23 PM

Neurologist
 
My neurologist put me on Cymbalta and I had a very bad reaction to it. After about two hours of taking one tablet I was sweating bullets and spent the rest of the night laying on the bathroom floor thinking, literally, that I was going to die. I called the neurologist the next day, and of course got the nurse's recording and left a message. Got not reply. Called a week later. Still no reply. That doctor never called me back. Some doctors are just really bad.

Neuroproblem 09-11-2015 03:04 AM

Quote:

Originally Posted by onebeed (Post 1170200)
My neurologist put me on Cymbalta and I had a very bad reaction to it. After about two hours of taking one tablet I was sweating bullets and spent the rest of the night laying on the bathroom floor thinking, literally, that I was going to die. I called the neurologist the next day, and of course got the nurse's recording and left a message. Got not reply. Called a week later. Still no reply. That doctor never called me back. Some doctors are just really bad.

Once your docs know your drugged up, they dont need to analyze your symptoms anymore, anything else they will attribute to you wanting more drugs. You cant really rely on the same docs who doesnt believe in your symptoms anyways.

onebeed 09-11-2015 12:46 PM

I don't think so...
 
Quote:

Originally Posted by Neuroproblem (Post 1170219)
Once your docs know your drugged up, they dont need to analyze your symptoms anymore, anything else they will attribute to you wanting more drugs. You cant really rely on the same docs who doesnt believe in your symptoms anyways.

No, I don't think my doctor thought I just wanted more drugs. I was very reluctant to try any drugs at first. I only relented when I had to go to work every day and function and my pain level was through the roof. I don't have diabetes or anything and the doctor didn't know what was causing the neuropathy. The supplements weren't helping. I think I had a fever from the Cymbalta because my clothes were soaked. I tried to find a thermometer, but the two I found didn't work. The bottle of pills said to call the doctor immediately if I got a fever. I waited until the next day and called. I don't know if he never got the message, got too busy, or what. I'm not sure if I had an allergic reaction to the Cymbalta or what happened, but I was sick for a week after taking just one tablet.

onebeed 09-11-2015 03:44 PM

I wasn't wanting MORE drugs...
 
Quote:

Originally Posted by Neuroproblem (Post 1170219)
Once your docs know your drugged up, they dont need to analyze your symptoms anymore, anything else they will attribute to you wanting more drugs. You cant really rely on the same docs who doesnt believe in your symptoms anyways.

After doing some more research, I think what I had was Seratonin Syndrome from that Cymbalta, which is potentially very serious. I should have just gone to the emergency room. It is hard to explain, but my brain just didn't feel like it was working right. But a week later, I definitely wasn't "drugged up" from one pill.

Hopeless 09-11-2015 03:53 PM

Method of diagnosis
 
Quote:

Originally Posted by uglogirl (Post 1169679)
Hi Pinky Nose, I hope he is right that is good news. Curious why did you change neurologist. It is puzzling his diagnosis. How long ago were the other test taken. He is right about crossing legs that causes me to have symptoms, but I do have PN.

I had mitral vale prolapse and. Recent cardiologist don't hear anything. It took care of itself. Then a. Nurse said to me you don't get rid of it.

All I know is it does not bother me any more so I go by the way I feel.

When


Uglogirl

When you were diagnosed with mitral valve prolapse, was this based solely upon the physician listening to your heart with his stethoscope?

I have heard that it is common, especially for a female, to have a "floppy" valve that will occasionally not close tightly and the physician may hear that on occasion. Also, told, that it is not something of concern. It is sort of like the flapper inside a toilet tank that may not close properly on occasion for any number of reasons.

That would explain why one doctor heard something and another did not.

Have you ever followed up on this matter and received additional testing? It might be worth looking into and not just dismissed as a fluke or common place.

Your post concerns me. Doctors sometime make mistakes but we as patients have to follow up and find out if it was a mistake or something that needs attention.

dogwalker 09-11-2015 10:38 PM

Quote:

Originally Posted by uglogirl (Post 1169679)
I had mitral vale prolapse and. Recent cardiologist don't hear anything. It took care of itself. Then a. Nurse said to me you don't get rid of it.

Uglogirl

I've had a similar experience, having MVP then not having it. In my early 30's I started having frequent abnormal heartbeats, and exercise-induced ventricular tachycardia. I was diagnosed with MVP by a UCLA cardiologist who was a nationally recognized expert in MVP. He heard the characteristic sounds, and the abnormal rhythms were attributed to the valve abnormality. I was put on inderal, and this eliminated the problems. About 20 years later I had repeat testing and was told there was no MVP. I stopped the med and sure enough the rhythm problems did not return. I've been told since that MVP doesn't cause the kind of issues I had. Looking back now that I've been diagnosed with sensory and autonomic neuropathy, I see the rhythm abnormalities as being among other unrecognized earlier symptoms of autonomic dysfunction.

My reasoning in believing that MVP was present and went away, is that I also had very hypermobile joints all my life, which have become more normal and less "loose" as I age. I think it's possible the laxity of the heart valve and the joints are related.

uglogirl 09-12-2015 05:40 PM

Hi hopeless


Hi Hopeless

I had the Ecco and wore a halter monitor and was diagnosed with MVP. I really suffered with it with chest pains arrhythmia also had anxiety and panic attacks. My cardiologist now tells me I don't have it anymore. I have not had any symptom from it for 20 years and Good riddance to it.


Uglogirl

uglogirl 09-12-2015 05:56 PM

Just got back from alledged specialist!!
 
Dogwalker,
Were you on inderal for 20 years? Yes I definitely had an echo and halter by a renowned cardiologist even saw Dr Healy one of the top at the Cleveland Clinic if my memory serves me right she was involved in politics later. She has since passed away.

My cousin also had mitral valve prolapse and was told it was gone... Different doctor. The point is it can resolve itself. Yours prob resolved itself too. This girl that told me it never goes away who is the dental surgeons assistant did not know.

I also had to take antibiotics fir any dental work now they don't give them.


Uglogirl

uglogirl 09-12-2015 06:05 PM

Hi neuro problem, I know it was very general if this was the only post you read by me. I am a diabetic 2 and have severe sensori motor Polyneuropathy. Bottom line that is what I do. Watch my carbs, exercise,rest control stress,etc


Uglogirl

pinkynose 09-13-2015 09:51 AM

Quote:

Originally Posted by uglogirl (Post 1170647)
Dogwalker,
Were you on inderal for 20 years? Yes I definitely had an echo and halter by a renowned cardiologist even saw Dr Healy one of the top at the Cleveland Clinic if my memory serves me right she was involved in politics later. She has since passed away.

My cousin also had mitral valve prolapse and was told it was gone... Different doctor. The point is it can resolve itself. Yours prob resolved itself too. This girl that told me it never goes away who is the dental surgeons assistant did not know.

I also had to take antibiotics fir any dental work now they don't give them.


Uglogirl

I have had a heart murmur and mitral valve prolapse for many years. It is very common and I don't believe a big deal. The only way I know to tell if it's gone is by getting an ultra sound of your heart. The reason I am sure mine has not gone away is because I also have a leak in my tricuspid valve. I am monitored for this every year with an ultra sound so they also look at the rest of my heart and see the mitral valve prolapse. Some years back they changed the protocol for having to pre-medicate before dental work with antibiotics. Now in my understanding, people with mitral valve prolapse do not need to medicate. Hope this helps.


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