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Old 09-10-2015, 10:51 AM #11
onebeed onebeed is offline
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Default Floors redone

Also, when they were doing the repairs for the water leak, they had to re-do the wood floors in my entire living room, kitchen, and hallway. We had to move out of the house for a week while they did that, but I wonder if there were toxic fumes when I moved back in. That was 3 months prior to the onset of the neuropathy.
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Old 09-10-2015, 11:17 AM #12
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Originally Posted by onebeed View Post
Also, when they were doing the repairs for the water leak, they had to re-do the wood floors in my entire living room, kitchen, and hallway. We had to move out of the house for a week while they did that, but I wonder if there were toxic fumes when I moved back in. That was 3 months prior to the onset of the neuropathy.
Do you get any RAST testing or iGe testing? i had Ige and showed normal levels. They can show allergy in your system.
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Old 09-10-2015, 02:04 PM #13
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Here's another

Bioaccumulation is how all these toxins ie, pesticides, stack up because their half life is longer than our ability to expel them
CVD is cardio vascular disease
CDC is center for disease control
MRL is minimal risk level- govt acceptance of hazardous substance
Xenobiotic is foreign material to body

https://www.doctorsdata.com/FlipBook...nsitivity.html
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Old 09-10-2015, 02:20 PM #14
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Originally Posted by Patrick Winter View Post
Do you get any RAST testing or iGe testing? i had Ige and showed normal levels. They can show allergy in your system.
No, I haven't had any of these tests.

When I had the water leak, they also replaced the carpet in my bedroom. The insurance company had it done. I wonder if they used some cheap carpet from China like the Lumber Liquidators laminates that were featured on 60 Minutes recently. I wonder if that is causing off gassing that made me sick. I am trying to find someone who can test it, but I wonder if it is too late and the damage is already done.
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Old 09-11-2015, 06:15 AM #15
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Default Personally--

--I suspect that, given the cornucopia of chemicals we are all now exposed to regularly, and how little is known about some of them and their interactions, there are more neuropathies that have a toxic origin than is generally believed.

Some toxic neuropathies are well-documented, and a number of these come from studies of workplace exposure, such as to mercury (think of the phrase "mad as a hatter"--mercury poisoning was observed earliest among haberdashery workers). But there are probably a lot of toxic neuropathies we don't suspect and which would be very difficult to test for.

One small hope of expanding this knowledge, ironically, lies in the studies of toxic exposures that happened during the incidents of 9/11--the follow-up over time has revealed a lot people with neurotoxic symptoms, both peripheral and central. Echoes Long Ago on these boards is very knowledgeable about this, as he suspects, as a first responder, this is how his neuropathy developed, and he has been a very strong advocate in the suits and court processes to get neuropathy recognized as an effect of the exposures there.
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Old 09-11-2015, 06:55 AM #16
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Quote:
Originally Posted by Healthgirl View Post
Off gassing/outgassing.
Mrs. D mentioned hard wood floors from China. Ours are premade hardwoods, but I don't know if they are from China. I thought they would be a much safer option than doing all the finishing work here. Maybe not. Formaldehyde seems to be the issue with this type of floor, but I can't find any info on neuropathy/nerve damage from formaldehyde. It mostly seems linked to cancers.

I have always been so careful of buying furniture and safe carpeting made of wool because I was aware of the off gassing toxins. Never thought about premade bathroom vanities and floors.
So, I am doing my homework. I came across this great website and they have 4 sizable free download books with tons of information on hazardous materials. Really great stuff that we should all be aware of especially us idiopaths

Here it is http://www.healthyhouseinstitute.com
If you're concerned about formaldehyde, stay away from those Magic Eraser cleaning sponges.

It's just shocking the toxic products our governments allow to be sold as household cleaners. http://www.davidsuzuki.org/.../the.....aning-products
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Old 09-11-2015, 07:04 AM #17
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Shocked

More on this... with a cryptic explanation from the manufacturer:

http://davidsuzuki.org/what-you-can-...-formaldehyde/

I would wail disappointment to lose my magic eraser! It even has a wonderful place in watercolor painting. It will lift paint easily without damage to the paper, to correct areas. I use it to clean stains off my palette. (some pigments are "staining").
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Old 09-11-2015, 08:14 AM #18
Patrick Winter Patrick Winter is offline
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Quote:
Originally Posted by glenntaj View Post
--I suspect that, given the cornucopia of chemicals we are all now exposed to regularly, and how little is known about some of them and their interactions, there are more neuropathies that have a toxic origin than is generally believed.

Some toxic neuropathies are well-documented, and a number of these come from studies of workplace exposure, such as to mercury (think of the phrase "mad as a hatter"--mercury poisoning was observed earliest among haberdashery workers). But there are probably a lot of toxic neuropathies we don't suspect and which would be very difficult to test for.

One small hope of expanding this knowledge, ironically, lies in the studies of toxic exposures that happened during the incidents of 9/11--the follow-up over time has revealed a lot people with neurotoxic symptoms, both peripheral and central. Echoes Long Ago on these boards is very knowledgeable about this, as he suspects, as a first responder, this is how his neuropathy developed, and he has been a very strong advocate in the suits and court processes to get neuropathy recognized as an effect of the exposures there.
Try going to your doctor and explain the situation with having an idiopathic disease and say you want a full allergy screen (RAST, Allergen-specific IgE Antibody Test) as well as blood test that check for toxins or deficiencies, (lead, mercury, copper, zinc, etc...). There are also blood tests for mold and fungus, they are more specialized though. And not always covered, but why not ask? A good general practitioner will dig for you. Yeah, these tests often can come up negative (they did for me) and you could still have an allergy but it should be done regardless. Skin allergy testing isn't a bad idea either. There will always be something that comes up and they'll try to get you to go on immunotherapy which usually is an absolute waste of time. regardless, its good to know what things could set you off.

I say, with an "idiopathic" disease you need to tell the doctor to dig and search every corner, not gonna sit around waiting for something to progress. I tell my doctors, KEEP LOOKING! Idiopathic means they haven't found the cause is all. It's a BS name to say they can't figure it out.
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Diagnosis: Idiopathic Small Fiber Neuropathy (Statin Induced)




• R-Lipoic Acid: 100mg - 300mg Daily
• Acetyl-L Carnitine: 1500mg Daily
• Vitamin B12: 1000 mcg Daily
• Magnesium 500mg Daily
• Grape Seed Extract 200mg Daily
• Benfotiamine 300mg daily

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Old 10-03-2015, 09:16 PM #19
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Default Just Scratching the Surface

Quote:
Originally Posted by Healthgirl View Post
Off gassing/outgassing.
Mrs. D mentioned hard wood floors from China. Ours are premade hardwoods, but I don't know if they are from China. I thought they would be a much safer option than doing all the finishing work here. Maybe not. Formaldehyde seems to be the issue with this type of floor, but I can't find any info on neuropathy/nerve damage from formaldehyde. It mostly seems linked to cancers.

I have always been so careful of buying furniture and safe carpeting made of wool because I was aware of the off gassing toxins. Never thought about premade bathroom vanities and floors.
So, I am doing my homework. I came across this great website and they have 4 sizable free download books with tons of information on hazardous materials. Really great stuff that we should all be aware of especially us idiopaths
Here's a few more:

1) Did you have your hardwood floors installed by a contractor? I ask only because as we all should know by now, the manufacture of Asbestos products was outlawed decades ago, but most of the public is unaware that the supplying and installation of these products already produced had been, and may still be legal. It was considered unfair (does anybody smell industry lobbies?) that supply companies who stocked their warehouses should lose their investment.
Small pieces of flooring cannot be nailed because of splitting so the are glued, usually with the industry standard most reliably durable asbestos-based adhesive, which over the years through ambient humidity changes releases the chemical in vapor form.

2) Because of energy conservation concerns in our quest to construct the "green home," the International Energy Conservation Code requires dwelling to be built so tight so as not to allow any natural infiltration. If a wall is unable to "breathe" from one side or the other, "vapor lock" is created which through the course of the annual temperature cycle promotes condensation inside the walls giving rise to the certain production of mold. Our good old drafty houses never had that problem.
As a building official I personally have seen walls opened up for remodeling less than a year after they were built (folks with too much money whom after 6 months got tired of the 75k kitchen that came with the house) and the inside surface of the wall sheathing was solid pitch-black with mold.

3) Another serious problem that we have now (depending on the delineated zone site) that older homes didn't, is Radon. Don't even get me started on that one.

4) Gypsum in its natural state most often has a Sulfur content, the degree of which varies from one area mine to another. China's veins contain a notoriously high level necessitating wide openings at opposing ends to create a constant airflow--as Gypsum can somewhat quickly release the Sulfur through evaporation.
The end of August 2005 brought the southeastern US Hurricane Katrina, coincidentally in the midst of a home-building boom. With all of the necessary rebuilding and reconstruction, coupled with the new construction already underway, there existed a severe shortage of US produced sheetrock, creating a huge demand for imported. China shifted into high gear opening new mines and cranking out high sulfur-content drywall by the cargo ships loads. The immediate inpouring of orders did not permit time for the usual precautionary pre-ventilating, shipping millions and millions of tons of the tainted boards to our suppliers.
An estimated 100,000+ homes were built, between 2005 and 2010, as well as countless remodeling with the drywall. Now particularly in the southeast, with its warmer climate and higher humidity, along with the already present mold, the released SO2 combined with the in-the-wall condensation to manufacture Sulfuric Acid which proceeded to eat up any and all metal inside, while releasing the toxic mix into the living space. Instead of my going on with this and turning it into a 200 page volume, just Google: Tainted Chinese Gypsum Board the next time you have nothing to do for three days.
There was no tracking of the geographical supply distribution so any of us who did any home improvement during that time or who knows how much later involving applied new sheetrock could have used the product.

These are just the items I can just come up with off the top of my head. It's scarier to imagine what is yet to discover.
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Old 10-03-2015, 09:45 PM #20
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Default Ideopathic

Quote:
Originally Posted by Patrick Winter View Post
Try going to your doctor and explain the situation with having an idiopathic disease and say you want a full allergy screen (RAST, Allergen-specific IgE Antibody Test) as well as blood test that check for toxins or deficiencies, (lead, mercury, copper, zinc, etc...). There are also blood tests for mold and fungus, they are more specialized though. And not always covered, but why not ask? A good general practitioner will dig for you. Yeah, these tests often can come up negative (they did for me) and you could still have an allergy but it should be done regardless. Skin allergy testing isn't a bad idea either. There will always be something that comes up and they'll try to get you to go on immunotherapy which usually is an absolute waste of time. regardless, its good to know what things could set you off.

I say, with an "idiopathic" disease you need to tell the doctor to dig and search every corner, not gonna sit around waiting for something to progress. I tell my doctors, KEEP LOOKING! Idiopathic means they haven't found the cause is all. It's a BS name to say they can't figure it out.
C'mon, Patrick, let's be a little PC here. It's not BS, it's called euphemism.(yeah, right)
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