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Old 09-12-2015, 06:50 AM #1
JoannaP79 JoannaP79 is offline
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Join Date: Feb 2015
Location: South England
Posts: 246
8 yr Member
JoannaP79 JoannaP79 is offline
Member
 
Join Date: Feb 2015
Location: South England
Posts: 246
8 yr Member
Default Struggling again

Hi all,

I've been on 3600mg gabapentin for about 2 months and coping OK with drowsiness. Recently however I feel off my head and find myself staring at the TV for hours sometimes ( when alone). It is kind of funny, but also pretty tragic. I have a 3 year old so it takes monumentous effort to keep up and take him out and play every day. I do it but I don't know how I am managing it.

I recently came off my entanercept ( tnf alpha blocker used to treat my other autoimmune disease) and I am sure that my neuropathy is much worse since. I'm very confused about what to do as I am worried about the potential damage of entanercept, yet I wonder if somehow that was affecting the sfn in a positive way now that I feel more pain again?

Has anyone found strict dietary changes beneficial? I'm trying starch and dairy free again which is exhausting as have to cook all the time from scratch.

I accept that my life is not the same in any way and never will be now but the quality of it is on the absolute floor. I'm just so angry this has happened so young.
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