[icelander]

I really hope it's ok to post a link here. This is THE major player in dealing successfully with pain issues IMO. I've not seen better and these issues have been a game changer for me in my struggles with fear and pain. I hope someone else can make use of this. As horrific as this disease feels, it's been a wake up call for me and shown me how I might have gotten to this place in my life and even more importantly shows me how to change the game should I decide the game I've been playing is not the right one for my happiness. I would have to say then that in some very important ways this disease has been my best teacher.

http://topdocumentaryfilms.com/proje...or-perception/

[Patrick Winter]

Originally Posted by icelander

I really hope it's ok to post a link here. This is THE major player in dealing successfully with pain issues IMO. I've not seen better and these issues have been a game changer for me in my struggles with fear and pain. I hope someone else can make use of this. As horrific as this disease feels, it's been a wake up call for me and shown me how I might have gotten to this place in my life and even more importantly shows me how to change the game should I decide the game I've been playing is not the right one for my happiness. I would have to say then that in some very important ways this disease has been my best teacher.

http://topdocumentaryfilms.com/proje...or-perception/

There's something to this I would agree. Mind over matter is very important. i know once I was told I had a certain health issue years ago my mindset changed. i became a more fragile, panicked, vulnerable person. I was always on edge awaiting the latest blood test result or scan result, etc.

At the same time when pain is real you will not talk yourself out of it and you will seek out mercy. Big pharma is not completely awful, there ARE good life saving medicines out there. For someone in excruciating pain there is a place for painkillers. Anesthesia is a big pharma invention and is essential. Same with thyroid and some hormone therapies. Thing is, pharmaceuticals should be a last resort, not a quick fix.

[icelander]

Originally Posted by Patrick Winter

There's something to this I would agree. Mind over matter is very important. i know once I was told I had a certain health issue years ago my mindset changed. i became a more fragile, panicked, vulnerable person. I was always on edge awaiting the latest blood test result or scan result, etc.

At the same time when pain is real you will not talk yourself out of it and you will seek out mercy. Big pharma is not completely awful, there ARE good life saving medicines out there. For someone in excruciating pain there is a place for painkillers. Anesthesia is a big pharma invention and is essential. Same with thyroid and some hormone therapies. Thing is, pharmaceuticals should be a last resort, not a quick fix.

I tend to agree. I'm not throwing out all my meds yet. But considering the results I'm getting I'm encouraged to go through them and either reduce dosages or eliminate them if they aren't really doing the job. And I know things like Armor Thyroid is helping me.

What the documentary is advocating IMO is self knowledge and doing your own research and experimentation rather than getting a doc to throw you a pill and considering that due diligence. But there is a lot more to that video than this IMO.

And since I've been doing my relaxation work and diet change I can't help but believe it's really seriously helping me. It's likely helped reduce my pain by half at least. I'm going to cut back slowly on my Gabapentin and see (see the video) if that so called "side effect" of inhibiting urination might be the cause of my bladder issues. I'll let you all know one way or the other.

But even if it wasn't helping much with pain my psychological health has improved dramatically also and was happening before the real pain reduction kicked in. I'm handling my life better in all areas.

Am I right, will it work for others? I'm not sure ultimately, things could come roaring back any minute. But they haven't and not for a while so I think I'll keep on keeping on until my body shows me I'm not on the right track.

[zkrp01]

Originally Posted by icelander

I tend to agree. I'm not throwing out all my meds yet. But considering the results I'm getting I'm encouraged to go through them and either reduce dosages or eliminate them if they aren't really doing the job. And I know things like Armor Thyroid is helping me.

What the documentary is advocating IMO is self knowledge and doing your own research and experimentation rather than getting a doc to throw you a pill and considering that due diligence. But there is a lot more to that video than this IMO.

And since I've been doing my relaxation work and diet change I can't help but believe it's really seriously helping me. It's likely helped reduce my pain by half at least. I'm going to cut back slowly on my Gabapentin and see (see the video) if that so called "side effect" of inhibiting urination might be the cause of my bladder issues. I'll let you all know one way or the other.

But even if it wasn't helping much with pain my psychological health has improved dramatically also and was happening before the real pain reduction kicked in. I'm handling my life better in all areas.

Am I right, will it work for others? I'm not sure ultimately, things could come roaring back any minute. But they haven't and not for a while so I think I'll keep on keeping on until my body shows me I'm not on the right track.

My wife has contracted cancer twice now from taking pills to help Psoriasis.Humira has it listed as a side effect but the advertisements seem to downplay it and smooth it over. Anything IMHO that allows you to get off a med without much loss of quality of life is the right track. I used some serious pain meds for a while. They have their place IMO as a bridge that you have to use. I feel that each idividual would have a different reaction to a stress reduction. Some more profound than others but all definitely positive. Anything you can think of to be more happy, right?P.S. Wife's lung nodule deemed scar tiki issue, woohoo!!!!

[Ragtop262]

Thanks for this Icelander. I have always believed that stress and anxiety in my life has been a large contributing factor to developing PN. (If not the root cause.)

Don't have time tonight, but I'm definitely looking forward to coming back and viewing that documentary as soon as I can. I'm also thinking about getting that book "full Catastrophe Living" that you posted about earlier.

I'm glad that you seem to be finding some measure of peace. I hope things keep moving in the right direction for you.

[madisongrrl]

My symptoms came on after the most stressful year of my life. I worked with an awful person who pretty much terrorized everyone that they worked with (and this still goes on). And I had to work with this person VERY closely. Sigh...

This wasn't the cause of my SFN, but it was sure fuel for the fire....especially if my neuropathy is immune-mediated, you really have to wonder.

The one positive thing that I've learned from this disease and this whole medical experience is that there is nothing medically that will ever scare me.

[icelander]

Originally Posted by madisongrrl

My symptoms came on after the most stressful year of my life. I worked with an awful person who pretty much terrorized everyone that they worked with (and this still goes on). And I had to work with this person VERY closely. Sigh...

This wasn't the cause of my SFN, but it was sure fuel for the fire....especially if my neuropathy is immune-mediated, you really have to wonder.

The one positive thing that I've learned from this disease and this whole medical experience is that there is nothing medically that will ever scare me.

Thanks for all the replies friends. The other thing I forgot to mention is that stress raises blood sugar and mind didn't get below 100 until I learned to calm down. Tonight I'm at 95 at thee hours post meal. Before this that would have been around 120.

It may not be the magic bullet but it might come close for some of us, who knows, I'm just beginning this process at this intensity. I'm lucky to be retired as I can do this three or more times a day.

I found a great CD with several programs just made for folk like us. It's called GOODBYE WORRIES by Roberta Shapiro. This is one of the best I've found after years of searching these CDs.
There are 4 programs on the CD.

1) Hypnosis/relaxation
2)Barrier Meditation Training (how to stop negative thought loops)
3) Relaxation Meditation
4) Breath and Music meditation
All are different lengths from about 8 min to 22 min.

There are so many benefits to being relaxed and calm, it can really smooth out relationships strained by this disease. I hope it can help some of you even more than it's helped me. Or at least some. I think it will. The most difficult part is getting started of course but some results will show up quickly if you work it and the rest come along soon after. Assuming you will get them. I think it's pretty universally known that stress is a killer.

[pinkynose]

Originally Posted by icelander

I really hope it's ok to post a link here. This is THE major player in dealing successfully with pain issues IMO. I've not seen better and these issues have been a game changer for me in my struggles with fear and pain. I hope someone else can make use of this. As horrific as this disease feels, it's been a wake up call for me and shown me how I might have gotten to this place in my life and even more importantly shows me how to change the game should I decide the game I've been playing is not the right one for my happiness. I would have to say then that in some very important ways this disease has been my best teacher.

http://topdocumentaryfilms.com/proje...or-perception/

Thank you Icelander for posting this here and helping me to turn on my "front brain." (from the video).

I just watched the video and it was quite educational. I took notes so I could refer to them when I need a refresher. The explanation of protection response (stress effects) on the body made more sense then anything I've heard before on this popular subject. My symptoms also came on after an obscenely stressful year and I know because it was continuous and there was no recovery phase my wires short circuited. I am thinking about possibilities

[icelander]

Originally Posted by pinkynose

Thank you Icelander for posting this here and helping me to turn on my "front brain." (from the video).

I just watched the video and it was quite educational. I took notes so I could refer to them when I need a refresher. The explanation of protection response (stress effects) on the body made more sense then anything I've heard before on this popular subject. My symptoms also came on after an obscenely stressful year and I know because it was continuous and there was no recovery phase my wires short circuited. I am thinking about possibilities

I'm so glad and grateful you may find some help here.

[janieg]

A new phase of my life begins on Monday as I start a full-time job for the first time in 12 years. I'd worked sporadically during some of those years, but not full-time and not in stressful positions.

I've accepted a job with a young high tech company going through a tremendous growth spurt. The stress is palpable, but been there done that. Worked for a high tech start-up for 14 years. The good news? Wear whatever you please. Sit on whatever you want. One woman's chair is one of those big inflatable balls. I know I'll least be comfortable sitting at a desk all day again.

So suddenly I'll be dealing with work stress. On the other side of the coin, financial stress will go away. Health insurance stress will go away. I'm putting on my big girl pants and being a responsible adult again.

I never learned to deal with work stress well. Couldn't turn it off at night and couldn't not bring it home with him. I'm hoping age and perspective will help this go-round.