I hope that flare mellows out. So sorry to read that. I can fully empathize though.

I know you said in some post you had never noticed a weather connection. Anything out of the ordinary or perhaos different than the past week going on today?

Actually it's been one of our picture perfect late summer days here. Temps around 80 and not a cloud. Should last all week. I'm sitting here inside thinking about all the mountain lake fishing I'd be doing were I well. It all seems like someone else's past now. It's so far away from me. :eek:

Thanks for your support. I'm feeling a little better at the moment even with the flaring. A combo of gabapentin, kratom, vicodin, and cbd oil. I might even be able to sleep. I have ambien but I hate the stuff.

One of the nastiest things besides the burning for me is that I get numbed out areas on my face and upper arms. It's almost like a mask and feels so weird. The tightness. Fortunately none on my face has pain yet.

And on and on I could go but I'm teaching myself not to dwell on the stuff I can't fix. And it's time for another relaxation CD. The interesting thing is that they are in part hypnosis and when I get into the zone, even with the flaring, for the time I'm in trance there is very little pain and a fair amount of bliss like feelings. Sometimes I feel like I'm off the bed floating. I wish I could stay there permanently. But eventually you gotta get to the bathroom and do the dishes. :(:winky:

Any news with the hemp oil working?

So, I bought the CDB complete oil.
Tried it this afternoon( 15 drops )
No changes. Will try again before bed.

Thanks for posting. I bought it also and will start the middle of next week. Please let me know if it has any effect on your sleep. I had tried a different one that gave me good energy but I couldn't sleep. I am a troubled sleeper under the best of circumstances so that doesn't necessarily mean anything....

I have found that I've needed much higher doses for reasonable effect. 15 did little unless I take it maybe 4 or more times a day. I often use 45 drops at a time and have found it more helpful for pain and sleep.

I started CBD Complete today!
 

I began with 5 drops this morning. I will take 5 more drops early afternoon. I know 15 drops is the beginning dose, however I can never take full amounts because I am very petite. I do not want to take any too close to bedtime for now. I will gradually up my dose to 15 drops as long as it doesn't interfere with sleep. I am sorry it took me so long to start but hopefully I will have good information to share next Sunday :)

Sorry guys but after only 1 day I'm putting the CBD oil on the shelf. I'm having a horrible flare and although I can't imagine 10 drops of CBD oil could be the cause I am not going to continue with this product for now. I had been having a 3 week almost symptom free run and last night I was burning, itching and twitching. :eek:

Ugh. Sorry to hear that.

I have found cbd oil to be of minimal help internally. It does help some however. It does seem to work better for me topically as a salve on my worst burning areas. So anyone might try that.