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Old 10-08-2015, 08:07 PM #1
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Could you please share and be more specific with dosages and times, etc.

My SFN has continued to progress.

TIA
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Old 10-08-2015, 08:11 PM #2
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Quote:
Originally Posted by baba222 View Post
Could you please share and be more specific with dosages and times, etc.

My SFN has continued to progress.

TIA
Like Gabapentin I take it three times a day and 15 to 20 drops each time. The 20 is at night. You'll (and I) need to adjust for effect but the 15 drops is their general starting point. You might need more or even less. If it works for you that is.

So I take a dose at about 7am then one at 3 or 4pm and then the last one before bed at about 11 pm. I don't think the timing is critical.
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Old 10-08-2015, 09:06 PM #3
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Today was a good one for me. No noticeable burning or cramping today which again is unusual. We shall see about the night. I want to add that this is only one part of a comprehensive program that I'm doing. Like I said however I've cut the gabapentin in half and if this continues in a week I'll cut it down to 600 and then 300 and hopefully 0/

But it might be wishful thinking as this is only the 4th day. It's encouraging that it seems to be working a little more each day. I'm prone like many to the placebo effect and it usually takes a few days to a week to get past that.

I'd like to speculate on the Placebo effect. If it happens and it does to me then it must be that some of what is going on is psychological. And then the massive attack on my anxiety and fears by using relaxation cds several times a day is going to have great effect. Which it seems to have been doing for me. My symptoms even before the CBD oil have been decreasing for about two or more weeks now. That's a very good indication that they are having good effect on my disease. And I feel emotionally pretty darn good these days.
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Old 10-08-2015, 09:33 PM #4
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Well, whatever is working may it continue on!
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Old 10-08-2015, 11:30 PM #5
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Thanks icelander for sharing your experience with the CBD oil (and for being willing to try something different from orthodox meds).

I'm interested in finding analgesic alternative's as many conventional painkillers I either react badly to or I'm restricted from use due to interactions with my other meds. Basically at the moment all I can take is paracetamol

I did a search for CBD oil interactions with hydrocortisone (one of my main meds) and came across these articles which I thought might be of interest to others following this thread:

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2503660/

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3165946/

Just out of curiosity are you expecting any flare-up as a result of reducing/stopping the gabapentin?

Look forward to reading about your progress.

Last edited by bluesfan; 10-08-2015 at 11:33 PM. Reason: add info
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Old 10-09-2015, 12:37 AM #6
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So far I've had no flaring, just the opposite, although it's only been a few days and more time is needed to see just how far and how much this will help.

Personally I have some cognitive dissonance around the medical profession and big pharma. If I can quit supporting them I'd love that as I think they often do a grave disservice to many people all in the name of making more and more $$ no matter what the cost to the patient. Of course this is not a blanket condemnation of the whole of the medical establishment but as I said enough cognitive dissonance for me to want out if possible. Not to mention the drastic reductions in so called side effects of most herbal substances. And the truth is IMO that some of them work better than pharm meds. And it's growing. Not fast enough for me but it is happening. And I'm lucky to have chosen Oregon as my home state. I fell in love with my little town in the Mountains and have never looked anywhere else. I love this state for many reasons.
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Old 10-10-2015, 09:29 AM #7
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Well I was flaring last night likely due to the quick reduction of the gabapentin. I took a double shot of cbd oil and some kratom and it settled down by bed time. I'm hanging tough so far as I really want to get off the gaba. I'll take it more slowly from here on out.
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