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NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Peripheral Neuropathy (https://www.neurotalk.org/peripheral-neuropathy/)
-   -   Amitriptyline (https://www.neurotalk.org/peripheral-neuropathy/227505-amitriptyline.html)

Cliffman 10-18-2015 01:29 PM
Quote:
Originally Posted by canagirl (Post 1178252)
I took nortryptyline and was up to 50mg. It helped a bit but my vision got really blurry so I had to stop. It wasnt helping enough to continue anyway. I was really worried about withdrawal because of what I heard but I experienced no withdrawal. I was also on gabapentin for four months ( up to 1400mg) but weaned off of that too because It wasn't helping much. I just stopped about 4 weeks ago ( slowly weaned) and I didn't experience any withdrawal from that either.

Despite thinking I haven't healed AT ALL because my insane sensations haven't changed, my pain has calmed down. I still have pain all day everyday but I am now able to handle it without medication. So I am either used to the pain or it has improved a bit.
Without any meds how well can you function? in other words can you work, drive, exercise, etc?

My hands, feet, legs don't allow for very much at the moment.

Cliffman

Cliffman 10-18-2015 01:32 PM
Quote:
Originally Posted by chris85 (Post 1178258)
Just taking it once doesn't cause withdrawal, it only happened after two weeks for me. Just because it is a low concentration doesn't change the fact it is a strong mind altering drug that when if you stop taking it suddenly it will cause side effects in many cases. It makes you sleep like a log so insomnia for a few days if you stop taking it is to be expected like most sleeping pills. Can be pretty useful for some people though, I don't think it is for me.
Chris have you found any meds that give you relief and somewhat of a normal life?

Thanks :)

Cliffman

Lukesmom 10-18-2015 02:55 PM
Quote:
Originally Posted by chris85 (Post 1178258)
Just taking it once doesn't cause withdrawal, it only happened after two weeks for me. Just because it is a low concentration doesn't change the fact it is a strong mind altering drug that when if you stop taking it suddenly it will cause side effects in many cases. It makes you sleep like a log so insomnia for a few days if you stop taking it is to be expected like most sleeping pills. Can be pretty useful for some people though, I don't think it is for me.
Amitriptyline is not a sleeping pill that I'm aware of. The dosage can be adjusted so you find it useful for pain relief and yet not feel groggy the following day, you have to work with your Dr to find the correct dose for you. The initial grogginess also gets less with time. I've been taking this for 10 months and it has helped me a lot.

Ragtop262 10-18-2015 09:39 PM
Quote:
Originally Posted by canagirl (Post 1178252)
I took nortryptyline and was up to 50mg. It helped a bit but my vision got really blurry so I had to stop. It wasnt helping enough to continue anyway. I was really worried about withdrawal because of what I heard but I experienced no withdrawal. I was also on gabapentin for four months ( up to 1400mg) but weaned off of that too because It wasn't helping much. I just stopped about 4 weeks ago ( slowly weaned) and I didn't experience any withdrawal from that either.

Despite thinking I haven't healed AT ALL because my insane sensations haven't changed, my pain has calmed down. I still have pain all day everyday but I am now able to handle it without medication. So I am either used to the pain or it has improved a bit.
Hi Canagirl, hadn't seen you around the board in a while, and was wondering how you were doing. Glad to hear that you are at least doing a little better, Hopefully your pain will continue to subside :)

chris85 10-19-2015 01:20 AM
Yes your right it isnt a sleeping pill but it has similar effects to one. Im not taking medication because i can still just about function and go to work etc although it is painful i need to be able to think clearly for my job. A lot of these meds for pain interfere with the thinking and concentration power. Im trying alternative methods before i start on pain killers because id like to avoid a long term addiction if at all possible. Im trying TCM at the moment. My gp is checking for b12 and diabetes to try and find some underlying cause.

Lukesmom 10-19-2015 08:07 AM
Quote:
Originally Posted by chris85 (Post 1178390)
Yes your right it isnt a sleeping pill but it has similar effects to one. Im not taking medication because i can still just about function and go to work etc although it is painful i need to be able to think clearly for my job. A lot of these meds for pain interfere with the thinking and concentration power. Im trying alternative methods before i start on pain killers because id like to avoid a long term addiction if at all possible. Im trying TCM at the moment. My gp is checking for b12 and diabetes to try and find some underlying cause.
Hi Chris,
I wasn't able to function on gabapentin or topamax due to walking around like a zombie, so I totally understand your situation. I refused to try medications in the beginning but realized that constant pain and insomnia is awful, and makes depression even worse. I finally found the right medicines that are working for now at least, and allow me to function. Hopefully you can find the cause and begin treatment to feel better...this forum has given me so much information that has been extremely useful. The supplements suggested here have made a difference for me as well. Thanks to Mrs. D and many other posters here you can find answers that your Drs. may be unaware of. Keep us posted.

Cliffman 10-20-2015 08:00 AM
Quote:
Originally Posted by Lukesmom (Post 1178427)
Hi Chris,
I wasn't able to function on gabapentin or topamax due to walking around like a zombie, so I totally understand your situation. I refused to try medications in the beginning but realized that constant pain and insomnia is awful, and makes depression even worse. I finally found the right medicines that are working for now at least, and allow me to function. Hopefully you can find the cause and begin treatment to feel better...this forum has given me so much information that has been extremely useful. The supplements suggested here have made a difference for me as well. Thanks to Mrs. D and many other posters here you can find answers that your Drs. may be unaware of. Keep us posted.
Hi Lukesmom,

Curious as to what works for you med wise? I have only had 3 days of the Amitirptyline at a low dose (12.5) and I am groggy. Also, it has not put a dent in the pain, especially the hands/forearms. It's a great pill as a sleep aid but not sure for more than that....

Cliffman :hug:

mrsD 10-20-2015 08:34 AM
It takes at least a month or more to start working on pain.

Cliffman 10-20-2015 10:51 AM
Quote:
Originally Posted by mrsD (Post 1178634)
It takes at least a month or more to start working on pain.
Hi mrsD,

Is that true for most of the meds or mainly for this one?


also I found this link but most of the info is over my head ....any thoughts please?

https://www.jackkruse.com/what-is-pe...al-neuropathy/

Thank you,

Cliffman

chris85 10-20-2015 11:41 AM
Gabapentin and lyrica are generally more effective than amitriptylene. My gp is offering me gabapentin at the moment, but im in no rush. It seems worth giving it a fair trial now your on it. Groggyness for me mostly dissapeared after 1 week.


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