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10-26-2015, 02:49 PM | #11 | ||
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Any idea on how to de-tox? TIA |
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10-26-2015, 03:20 PM | #12 | |||
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Wisest Elder Ever
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Here is one site on listing symptoms of gadolinium toxicity:
http://gadoliniumtoxicity.com/help/symptoms/ There are more on the net. http://gadoliniumtoxicity.com/2015/0...-enhanced-mri/ http://www.chelationmedicalcenter.co...avy_metal.html
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"Thanks for this!" says: | DejaVu (11-14-2015) |
11-10-2015, 04:59 PM | #13 | ||
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hello all,
just having a really rough day. dont know if my PN is getting worse, but it seems to be spreading into my abdomen & lower back today. i figured i'd give a little update. saw my surgeon yesterday. i also spoke with the woman who administered the contrast dye for my ct myleogram a few months ago. i asked her if the dye has ever caused PN. she seemed pretty defensive and said the worse thats happened is a headache that lasted a day and the dye completely leaves your system within a few days. i didn't mention gadolinium though. when i spoke to my surgeon he took a look at my mri. he said the report was benign, but looking closer he noticed some bulges at L4, L5, S1 and said those were likely the cause of my PN. he said the first thing i need to do is a EMG with my neuro. he did not recommend surgery. he said potentially i could do steroid shots in my lumbar and wait and see if that has an effect on my PN. has anyone had experience with shots? effective? makes it worse? no response? i'll be seeing my neuro the 19th. i have a list of questions compiled from this thread and my own research. will ask for blood work among other things. i appreciate everyone here and hope you are coping well with your PN. i wish you the best. |
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"Thanks for this!" says: | DejaVu (11-14-2015) |
11-10-2015, 07:04 PM | #14 | ||
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N/A
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I live with a degenerative back going on 60 yrs and have learned to live with it. With aging all backs begin to degenerate. I've had 2 scripts for steroid shots and but never did them.
If they work, it's temporary and some end up with a series of 3. These steroids are the best and worst drug and do break down the bones. I take a lot of joint supplements, mild exercise and daily stretching and don't deal with the classic neuropathy many have here. Mine is from a hip replacement in 2010 where I was left with Femoral Nerve Damage. The burning is now gone since I took Inosine and Sphingolin for 3 months and I've talked about these here. I take 50mg B6 daily and so far the burn has not returned. 80% of my thigh is numb and I'm going to buy a Tens Unit soon to use at home. Chiropractors can help, acupuncture can help. I do not want back surgery so do all I can to keep going at 77. Wear back support, knee support and foot/ankle support. My body is all messed up due to hip surgery. C |
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"Thanks for this!" says: | itburns (11-10-2015) |
11-10-2015, 10:43 PM | #15 | ||
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Junior Member
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thank you for sharing your story, caroline. that's troubling to hear that the benefits are only temporary and they could weaken the vertebrae. i'll be sure to ask about that with my neuro.
i was looking at inosine and sphingolin online. if you look up the results on amazon, would that be a good source to buy? what dosages would you recommend? the brands are ecological formulas and source naturals: Ecological Formulas - Sphingolin 200 mg 240 caps, Source Naturals Inosine, 500mg, 120 Tablets |
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11-11-2015, 01:31 AM | #16 | ||
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Hi, I know amazon sells the two supplements you ask about. I bought mine from pureformulas.com and recalling I took 1 Sphingolin daily and 1-2 Inosine daily. Did both these for 3 months and the burning left my thigh. We are all different so why not give it a try. One of our other members here takes Inosine that I know of. Maybe others do but I don't that for sure. There is a separate post on these here. C
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"Thanks for this!" says: | itburns (11-11-2015) |
11-11-2015, 04:23 AM | #17 | ||
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11-11-2015, 07:47 AM | #18 | |||
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Magnate
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Hi itburns,
There has been discussion regarding the relative safety of sphingolin on the Vitamins Forum as it is derived from bovine spinal cord. The risk of contamination and contraction of vCJD should infected source materials be used is high. Here is a link MrsD found, warning of the risks: http://www.centerforfoodsafety.org/i...in-supplements Dave.
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11-11-2015, 12:35 PM | #19 | ||
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N/A
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We all think so different don't we. I worry more about the lab meds and all their side effects. I'm glad I tried both these as the Burn is gone.
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11-11-2015, 02:16 PM | #20 | ||
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Junior Member
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@neuroproblem yes, < 1% of the population gets scheuermann's. i guess i was one of the lucky few. why do you think the PN is caused by the kyphosis or the surgery? i didn't have signs of PN for years after my surgery for kyphosis. it wasn't until i had my surgery for the stenosis in my neck that i did. as far as the b6, all i was taking was a simple multivitamin. its strange to think that would cause my PN.
@englishdave i remember reading about mad cow potentially being in sphingolin. thanks for reminding me. i think i will just take the inosine for now, but i'll consult my neuro before i start taking it. |
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