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#1 | ||
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Junior Member
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I'm in a pretty bad way at the moment. The PN I have seems largely treatment resistant and there are no more meds to try that are available in my country, NZ. I'm being discharged from the pain clinic where I've had phone contact with a pain specialist for 10 months. My own Region has no pain specialist and a completely useless rehab ward. Treatment for pain here is very conservative. There seems to be excessive concern about medication and possible difficulties while ignoring the reality that to live in constant searing pain may not be too conducive to me wanting to continue.
I've worked so hard in multiple ways to manage my illness but have become exhausted to the point I struggle to bother. When I became ill in 2013 I lost the ability to drive, walk or work within 6 weeks. I developed a neurological condition at the same time. Similar to MS. Nothing showed up in tests, MRI, etc so the Neurology dept refuse to see me. They tested me extensively in 2013 and I'm grateful for that but they have now dismissed me and I think believe my symptoms are psychological. I have steadily declined from the start and now have muscle wastage in my right leg and I suspect atrophy in my hands and feet. The pain is constant and very extreme. My life is on the edge of crisis daily. I don't know how to change things. I feel like my life ended in 2013 when I was 45. Most of the important things have gone and there is no pleasure or meaning in my life. And I don't know what to do. I've run out of puff and haven't got anything more to give to this. |
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"Thanks for this!" says: |
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#2 | ||
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Member
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I'm so sorry and wish I knew how to help you.
I'm in the US so I'm pretty useless as far as medication advise. Can they re-run tests now ? It's been 2 years since the others. Maybe something will show up now that they can treat you for. Prayers for you dear indigo and a soft hug. ![]() Debi from Georgia |
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"Thanks for this!" says: | indigo (10-28-2015) |
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#3 | ||
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I'm so sorry to hear this and I too understand because I'm living it as well. I'm new so don't have a lot of answers however there are some excellent supportive folks here. I'm sorry I can not be of more help but want to let you know I care and understand completely. Ciiffman ![]() |
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#4 | ||
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#5 | ||
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Member
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All I can say is that I understand how you feel.
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#6 | ||
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Member
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Hello,
Do you have anyone that can go to appointments with you? I found they listened better when someone else said this was NOT psychological. I know how frustrating it can be. I once said, "I have never been this sick and had so few people that believed me." I was someone prior that never was doubted. So sorry for all your losses. ![]() |
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"Thanks for this!" says: | Diandra (10-28-2015), indigo (10-28-2015), madisongrrl (10-28-2015), St George 2013 (10-28-2015), zkrp01 (10-30-2015) |
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#7 | ||
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Junior Member
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"Thanks for this!" says: | Diandra (10-28-2015) |
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